ArticleBritish journal of pain2021
Lived experiences of informal caregivers of people with chronic musculoskeletal pain: a systematic review and meta-ethnography.
Article in British journal of pain, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it.
- The Burden of Informal Caregiving for Adults with Musculoskeletal Conditions: A Systematic Review.PharmacoEconomics · 2025Pooled it
- Trial
- Effects of a Family Caregiver Care Programme in Musculoskeletal Pain and Disability in the Shoulder-Neck Region-A Randomised Clinical Trial.International journal of environmental research and public health · 2022Trial
- "Don't tell me I'm going to feel joy": The emotional burden of informal caregivers of patients with a fragility fracture discharged from a rehabilitation hospital.Osteoporosis international : a journal established as result of cooperation between the European Foundation for Osteoporosis and the National Osteoporosis Foundation of the USA · 2026Article
- Dual Experience and Management of Pain in Older Adults and Their Caregivers.Clinics in geriatric medicine · 2026Review
- Mental health of caregivers for people with dementia and cerebral palsy as a key determinant of caregiver burden: a multivariable analysis.Frontiers in public health · 2026Article
- Caregiving Activities and Activity-Limiting Pain Among African American Caregivers.Journal of pain and symptom management · 2026Article
- Article
- The advocacy effect: a grounded theory study on the inclusion of caregivers or nearest support persons in research to better understand patient outcomes in rheumatoid arthritis.Rheumatology international · 2025Article
- Co-development of an evidence-informed, theoretically driven exercise programme for people with chronic non-specific neck pain (the EPIC-Neck programme - "Exercise Prescription Improved through Co-design").BMC musculoskeletal disorders · 2025Article
- Occupational therapy in pain management: An exploration and description of current UK practice.The British journal of occupational therapy · 2025Article
- Exploring the experience of informal caregivers of dependent elderly people with the well-being valuation method.Frontiers in psychiatry · 2025Article
- Living with non-cardiac chest pain - An inductive qualitative interview study of spouses' perspectives.Nursing open · 2024Article
- Caregiving for older people living with chronic pain: analysis of the English longitudinal study of ageing and health survey for England.British journal of pain · 2023Article
- Becoming a secondary actor of one's own life: A qualitative study of the experiences of informal caregivers in the care of people with chronic pain.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPeople with chronic pain often seek support from friends and family for everyday tasks. These individuals are termed informal caregivers. There remains uncertainty regarding the lived experiences of these people who care for individuals with chronic musculoskeletal pain. The aim of this article is to synthase the evidence on the lived experiences of informal caregivers providing care to people with chronic musculoskeletal pain.
methodsA systematic literature review was undertaken of published and unpublished literature databases including EMBASE, MEDLINE, CINAHL, PubMed, the WHO International Clinical Trial Registry and ClinicalTrials.gov registry (to September 2019). Qualitative studies exploring the lived experiences of informal caregivers of people with chronic musculoskeletal pain were included. Data were synthesised using a meta-ethnography approach. Evidence was evaluated using the Critical Appraisal Skills Programme qualitative appraisal tool.
resultsFrom 534 citations, 10 studies were eligible (360 participants: 171 informal caregivers of 189 care recipients). The evidence was moderate quality. Seven themes arose: the relationship of caregivers to healthcare professionals; role reversal with care recipients; acting the confidant to the care recipient; a constant burden in caregiving; legitimising care recipient's condition; knowledge and skills to provide caregiving; and the perception of other family members and wider society to the caregiver/care recipient dyad.
conclusionThe lived experiences of caregivers of people with chronic musculoskeletal pain is complex and dynamic. There is an inter-connected relationship between caregivers, care recipients and healthcare professionals. Exploring how these experiences can be modified to improve a caregiving dyad's lived experience is now warranted.
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