SynthesisMedical decision making : an international journal of the Society for Medical Decision Making2021
Addressing Health Literacy in Patient Decision Aids: An Update from the International Patient Decision Aid Standards.
Synthesis in Medical decision making : an international journal of the Society for Medical Decision Making, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 55 papers, 6 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
55 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Personalizing cancer risk: a systematic review of risk communication strategies.Journal of cancer research and clinical oncology · 2026Pooled it
- Improving complementary medicine literacy: a systematic review of educational interventions for consumers and caregivers.BMC complementary medicine and therapies · 2025Pooled it
- Feasibility and Efficacy of Decision Aids to Improve Decision-Making for Contralateral Prophylactic Mastectomy: A Systematic Review.Annals of surgical oncology · 2025Pooled it
- Use of digital patient decision-support tools for atrial fibrillation treatments: a systematic review and meta-analysis.BMJ evidence-based medicine · 2025Pooled it
- A Systematic Review and Meta-Analysis of Patient Decision Aids for Socially Disadvantaged Populations: Update from the International Patient Decision Aid Standards (IPDAS).Medical decision making : an international journal of the Society for Medical Decision Making · 2021Pooled it
- Clarifying Values: An Updated and Expanded Systematic Review and Meta-Analysis.Medical decision making : an international journal of the Society for Medical Decision Making · 2021Pooled it
- Shared decision-making with patients with limited health literacy - experiences and needs of GPs regarding values clarification.Scandinavian journal of primary health care · 2026Article
- Shared Decision-Making in the Management of Deep Partial-Thickness Burns: Development and Implementation of a Multicomponent Decision Aid.Journal of medical Internet research · 2026Article
- Shared Decision-Making with Patients with Multimorbidity and Limited Health Literacy: The Importance of Values Clarification.Journal of general internal medicine · 2026Article
- Development and Validation of a Patient-Centered Scale to Evaluate Decision Aid Usability and Information Overload.Medical decision making : an international journal of the Society for Medical Decision Making · 2026Article
- Prioritizing Equity in Design and Implementation of Consumer-Facing Digital Resources to Support Engagement and Shared Decision-Making.Journal of medical Internet research · 2026Article
- Updated International Patient Decision Aid Standards (IPDAS version 5.0): modified Delphi, evidence informed consensus process.BMJ (Clinical research ed.) · 2026Article
- The New Obesity Treatment Landscape: Challenges and Opportunities to Promote Shared Decision-Making in People With Obesity and Type 2 Diabetes.Diabetes care · 2026Review
- Article
- Risk factors of decisional conflict among people living with chronic pain identified through a pan-Canadian survey.Scientific reports · 2025Article
- The perceived ethical appropriateness of messaging on breast cancer screening cessation among older women.Patient education and counseling · 2025Article
- Deciding on the location for receiving parenteral antimicrobial therapy: development and preliminary testing of a patient decision aid.BMC health services research · 2025Article
- Defining the strategies to advance health-literacy-friendly patient decision aids based on the ICA-NRM approach.BMC health services research · 2025Article
- Improving Decision-Making Encounters in Lung Cancer Treatment: Feasibility and Acceptability of a Low-Literacy Conversation Tool (iDECIDE).CHEST pulmonary · 2025Article
- Optimizing risk-reducing surgery and aspirin decision aids for Lynch syndrome carriers using the person-based approach: A think-aloud interview study.Journal of genetic counseling · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
10 authors.
Funding
Abstract
backgroundThere is increasing recognition of the importance of addressing health literacy in patient decision aid (PtDA) development. PURPOSE: An updated review as part of IPDAS 2.0 examined the extent to which PtDAs are designed to meet the needs of people with low health literacy/socially-disadvantaged populations. DATA SOURCES: Reference lists of Cochrane reviews of randomized controlled trials (RCTs) of PtDAs (2014, 2017, and upcoming 2021 versions). STUDY SELECTION: RCTs that assessed the impact of PtDAs on low health literacy or other socially-disadvantaged groups (i.e., ≥50% participants from socially-disadvantaged groups and/or subgroup analysis in socially-disadvantaged group/s). DATA EXTRACTION: Two researchers independently extracted data into a standardized form including PtDA development and evaluation details. We searched online repositories and emailed authors to access PtDAs to verify grade reading level, understandability, and actionability. DATA SYNTHESIS: Twenty-five of 213 RCTs met the inclusion criteria, illustrating that only 12% of studies addressed the needs of low health literacy or other socially-disadvantaged groups. Grade reading level was calculated in 8 of 25 studies (33%), which is recommended in previous IPDAS guidelines. We accessed and independently assessed 11 PtDAs. None were written at sixth-grade level or below. Ten PtDAs met the recommended threshold for understandability, but only 5 met the recommended threshold for actionability. We also conducted a post hoc subgroup meta-analysis and found that knowledge improvements after receiving a PtDA were greater in studies that reported using strategies to reduce cognitive demand in PtDA development compared with studies that did not (χ LIMITATIONS: We were unable to access 13 of 24 PtDAs.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.