ArticlePalliative medicine2021
Identification of palliative care needs among people with dementia and its association with acute hospital care and community service use at the end-of-life: A retrospective cohort study using linked primary, community and secondary care data.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
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Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Determining six-month prognosis among people with dementia living in care homes: a systematic review of prognostic tools.Age and ageing · 2026Pooled it
- Palliative Care in Early Dementia.Journal of pain and symptom management · 2024Pooled it
- Article
- Identifying aspects of palliative and end-of-life care that are most important to people with lived experience and can be measured using routine data: a series of patient and public involvement workshops.Journal of patient-reported outcomes · 2026Article
- Palliative care conversations with people with dementia who live alone: untapped dimensions from a lived experience.Frontiers in dementia · 2026Article
- Challenges to timely access to out-of-hours end-of-life medications: a qualitative study in UK primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2025Article
- Body Mass Index Progression, Development of Complications and Healthcare Costs Over 8 Years in UK Individuals Living With Overweight/Obesity.Advances in therapy · 2025Observational
- "You like to be in control of your own destiny to a degree, don't you?": conscientious autonomy and planning for future care with dementia.BMC palliative care · 2025Article
- Emergency department use and responsiveness to the palliative care needs of patients with dementia at the end of life: A scoping review.Palliative & supportive care · 2025Article
- Priority setting in dementia palliative care research for people living with dementia and carers: A mixed methods consensus study.Palliative care and social practice · 2025Article
- Estimating the escalating future need for palliative care among people living with dementia.Palliative medicine · 2024Article
- Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops.Palliative medicine · 2024Article
- Exploring End-of-Life Care for Patients with Breast Cancer, Dementia or Heart Failure: A Register-Based Study of Individual and Institutional Factors.Healthcare (Basel, Switzerland) · 2024Article
- Models of care for people with dementia approaching end of life: A rapid review.Palliative medicine · 2023Review
- Patterns of unplanned hospital admissions among people with dementia: from diagnosis to the end of life.Age and ageing · 2022Article
- Primary care contacts, continuity, identification of palliative care needs, and hospital use: a population-based cohort study in people dying with dementia.The British journal of general practice : the journal of the Royal College of General Practitioners · 2022Article
- Exploring costs, cost components, and associated factors among people with dementia approaching the end of life: A systematic review.Alzheimer's & dementia (New York, N. Y.) · 2021Review
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6 authors.
Funding
Abstract
backgroundHospital admissions among people dying with dementia are common. It is not known whether identification of palliative care needs could help prevent unnecessary admissions.
aimTo examine the proportion of people with dementia identified as having palliative care needs in their last year of life, and the association between identification of needs and primary, community and hospital services in the last 90 days.
designRetrospective cohort study using Discover, an administrative and clinical dataset from 365 primary care practices in London with deterministic individual-level data linkage to community and hospital records. SETTING/
participantsPeople diagnosed with dementia and registered with a general practitioner in North West London (UK) who died between 2016 and 2019. The primary outcome was multiple non-elective hospital admissions in the last 90 days of life. Secondary outcomes included contacts with primary and community care providers. We examined the association between identification of palliative care needs with outcomes.
resultsAmong 5804 decedents with dementia, 1953 (33.6%) were identified as having palliative care needs, including 1141 (19.7%) identified before the last 90 days of life. Identification of palliative care needs before the last 90 days was associated with a lower risk of multiple hospital admissions (Relative Risk 0.70, 95% CI 0.58-0.85) and more contacts with the primary care practice, community nurses and palliative care teams in the last 90 days.
conclusionsFurther investigation of the mechanisms underlying the association between identification of palliative care needs and reduced hospital admissions could help reduce reliance on acute care for this population.
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