Evidence map›Paper›PMID 34043836›Full record

ReviewInternational journal of geriatric psychiatry2021

Dementia wellbeing and COVID-19: Review and expert consensus on current research and knowledge gaps.

Kathy Y Liu, Robert Howard, Sube Banerjee, Adelina Comas-Herrera, Joanne Goddard, Martin Knapp, Gill Livingston, Jill Manthorpe, John T O'Brien, Ross W Paterson and 7 more

Abstract readReviewConsensus Statement
PubMed Full text at PMC Publisher
In one paragraph

Review in International journal of geriatric psychiatry, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 51 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
51citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

51 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
  3. Observational
  4. Article
  5. Article
  6. Review
  7. COVID-19 Factors Associated With Medication Changes Among Nursing Home Residents With Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
  8. How did the Sudden Closures of Adult Day Services During COVID-19 Impact Dementia Care Dyads?Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025
    Article
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  20. Has COVID-19 affected dementia diagnosis rates in England?International journal of geriatric psychiatry · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Kathy Y LiuDivision of Psychiatry, University College London, London, UK.ORCID 0000-0002-7482-2758
Robert HowardDivision of Psychiatry, University College London, London, UK.
Sube BanerjeeFaculty of Health, University of Plymouth, Plymouth, UK.
Adelina Comas-HerreraDepartment of Health Policy, London School of Economics and Political Science, Care Policy and Evaluation Centre, London, UK.
Joanne GoddardEconomic and Social Research Council, UK Research and Innovation, Swindon, UK.
Martin KnappDepartment of Health Policy, London School of Economics and Political Science, Care Policy and Evaluation Centre, London, UK.
Gill LivingstonDivision of Psychiatry, University College London, London, UK.
Jill ManthorpeNIHR Policy Research Unit in Health and Social Care Workforce, King's College London, London, UK.
John T O'BrienDepartment of Psychiatry, University of Cambridge School of Clinical Medicine, Cambridge, UK.
Ross W PatersonDementia Research Centre, Queen Square UCL Institute of Neurology, University College London, London, UK.
Louise RobinsonPopulation Health Sciences Institute, Faculty of Medical Sciences, Newcastle University, Newcastle, UK.ORCID 0000-0003-0209-2503
Martin RossorDementia Research Centre, Queen Square UCL Institute of Neurology, University College London, London, UK.
James B RoweMedical Research Council Cognition and Brain Sciences Unit, University of Cambridge, Cambridge, UK.
David J SharpDepartment of Brain Sciences, Imperial College London, London, UK.
Andrew SommerladDivision of Psychiatry, University College London, London, UK.
Aida Suárez-GonzálezDementia Research Centre, Queen Square UCL Institute of Neurology, University College London, London, UK.
Alistair BurnsDivision of Neuroscience and Experimental Psychology, The University of Manchester, Manchester, UK.ORCID 0000-0002-9837-0645

Funding

Economic and Social Research CouncilEngineering and Physical Sciences Research CouncilMedical Research Council MR/S021418/1NIHR Biomedical Research Centre, Royal Marsden NHS Foundation Trust/Institute of Cancer ResearchUK Dementia Research InstituteUK Research and InnovationUniversity College London Hospitals NHS Foundation TrustUniversity of Worcester
6 · The paper itself

Abstract

objectivesIn response to a commissioned research update on dementia during the COVID-19 pandemic, a UK-based working group, comprising dementia researchers from a range of fields and disciplines, aimed to describe the impact of the pandemic on dementia wellbeing and identify priorities for future research.

methodsWe supplemented a rapid literature search (including unpublished, non-peer reviewed and ongoing studies/reports) on dementia wellbeing in the context of COVID-19 with expert group members' consensus about future research needs. From this we generated potential research questions the group judged to be relevant that were not covered by the existing literature.

resultsThemes emerged from 141 studies within the six domains of the NHS England COVID-19 Dementia Wellbeing Pathway: Preventing Well, Diagnosing Well, Treating Well, Supporting Well, Living Well and Dying Well. We describe current research findings and knowledge gaps relating to the impact on people affected by dementia (individuals with a diagnosis, their carers and social contacts, health and social care practitioners and volunteers), services, research activities and organisations. Broad themes included the potential benefits and risks of new models of working including remote healthcare, the need for population-representative longitudinal studies to monitor longer-term impacts, and the importance of reporting dementia-related findings within broader health and care studies.

conclusionsThe COVID-19 pandemic has had a disproportionately negative impact on people affected by dementia. Researchers and funding organisations have responded rapidly to try to understand the impacts. Future research should highlight and resolve outstanding questions to develop evidence-based measures to improve the quality of life of people affected by dementia.

Indexed as

COVID-19DementiaHumansPandemicsQuality of LifeSARS-CoV-2COVID-19dementiaresearchwellbeing

Identifiers

PMID34043836
PMCPMC8237017

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.