ArticleThe patient2021
Patient-Reported Experience and Outcome Measures in People Living with Diabetes: A Scoping Review of Instruments.
Article in The patient, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 4 of them syntheses that pooled it.
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Who cites it
16 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Surgical patient-reported experience measures and qualitative experience studies: systematic review.BJS open · 2024Pooled it
- Psychosocial-Spiritual Experiences and Outcomes in Parents of Children with Type 1 Diabetes Mellitus from the Middle East and North Africa Region: A Systematic Review.Pediatric diabetes · 2024Pooled it
- Patient-reported outcome measures for assessing health-related quality of life in people with type 2 diabetes: A systematic review.Reviews in endocrine & metabolic disorders · 2022Pooled it
- Content Validity of Patient-Reported Outcome Measures Developed for Assessing Health-Related Quality of Life in People with Type 2 Diabetes Mellitus: a Systematic Review.Current diabetes reports · 2022Pooled it
- Patient-Centered Diabetes Care Through an Ethical Lens: Associations with Patient Satisfaction and Patient-Reported Outcomes in Saudi Primary Healthcare.Healthcare (Basel, Switzerland) · 2026Article
- Application of the paediatric medical traumatic stress model to the mental health experience of young people living with type 1 diabetes: a qualitative study.BMC psychiatry · 2026Article
- Barriers and facilitators to using patient-reported experience measures for diabetes care: a qualitative study in Thailand.Frontiers in health services · 2026Article
- Exploring feasible ways of person-reported outcome measurement in routine type 1 diabetes care: a protocol for the Diabeter-PROM study.Frontiers in clinical diabetes and healthcare · 2026Article
- Patient-Reported Experience (PREMs) and Outcome (PROMs) Measures in Diabetic Foot Disease Management-A Scoping Review.Journal of clinical medicine · 2025Review
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- Spanish Validation of the Problem Area in Diabetes-Pediatric Version Survey and Its Weak Association with Metabolic Control Parameters in Pediatric Diabetes: A Cross-Sectional Multicenter Study.Journal of clinical medicine · 2025Article
- Fear of hypoglycemia is linked to poorer glycemic control and reduced quality of life in adults with type 1 diabetes.Frontiers in endocrinology · 2025Article
- Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review.Diabetologia · 2023Review
- Development and validation in Ecuador of the EPD Questionnaire, a diabetes-specific patient-reported experience and outcome measure: A mixed-methods study.Health expectations : an international journal of public participation in health care and health policy · 2022Article
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Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDiabetes mellitus is a global public health concern, with over 463 million people living with this chronic disease. Pathology complexity, management difficulty, and limited participation in care has resulted in healthcare systems seeking new strategies to engage people living with diabetes. Patient-reported experience measures (PREMs) and patient-reported outcome measures (PROMs) were developed to address the gap between the healthcare system expectation and patient preference.
objectiveThis study aimed to review the existing literature on PREMs and PROMs specific to type 1 and 2 diabetes, and report the dimensions report the dimensions they have measured.
methodsA scoping review was conducted from January 1985 to March 2020 of six databases, MEDLINE, EMBASE, PsycINFO, CINHAL, Scopus, and BiblioPro, to identify PREM and PROM instruments specific for type 1 and 2 diabetes.
resultsOverall, 34 instruments were identified, 32 PROMs and two PREMs. The most common instrument included outcomes related to quality of life at 44% (n = 15), followed by satisfaction (whether with treatment, device, and healthy habits) at 26% (n = 9). Furthermore, instruments regarding personal well-being accounted for 15% (n = 5). For instruments that measure experiences of persons with diabetes, there were two scales of symptoms, and one related to the attitude patients have toward the disease.
conclusionsDiabetes-specific validated instruments mainly focus on quality of life, education, and treatment, and sometimes overlap each other, in their subscales and assessment dimensions. Constructs such as cultural and religious beliefs, leisure, and work life may need more attention. There appears to be a gap in instruments to measure experiences of individuals who "live with diabetes" and seek to lead a "normal life."
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.