Evidence map›Paper›PMID 34040836›Full record

ArticleHealth psychology and behavioral medicine2018

Parent engagement in autism-related care: a qualitative grounded theory study.

Stephen J Gentles, David B Nicholas, Susan M Jack, K Ann McKibbon, Peter Szatmari

Open access · goldAbstract read
In one paragraph

Article in Health psychology and behavioral medicine, 2018. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
3.8field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed, 44 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. Trajectory research in children with an autism diagnosis: A scoping review.Autism : the international journal of research and practice · 2024
    Article
  5. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 2 institutions in 1 country.

Stephen J GentlesHealth Information Research Unit, and Offord Centre for Child Studies, McMaster University, Hamilton, Canada.ORCID https://orcid.org/0000-0003-2004-1451
David B NicholasFaculty of Social Work, University of Calgary, Edmonton, Canada.ORCID https://orcid.org/0000-0003-4480-322X
Susan M JackSchool of Nursing, McMaster University, Hamilton, Canada.
K Ann McKibbonHealth Information Research Unit, McMaster University, Hamilton, Canada.
Peter SzatmariDepartment of Psychiatry and Behavioural Neurosciences, Offord Centre for Child Studies, Hamilton, Canada.
McMaster University · CAUniversity of Calgary · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Parents of children with autism assume substantial responsibility for navigating intervention to address autism-related concerns, including involvement in therapy. Little is known, from the perspective of these parents, regarding how to best engage and support them in this navigating process as it evolves over the child's development. In this article, we present findings from a large qualitative study that investigated how parents of children with autism navigate intervention, to construct an in-depth theoretical account of how this group comes to be engaged in individual-level care. Using grounded theory methods and a symbolic interactionist framework, we analyzed select documents and 45 intensive interviews conducted with 32 mothers and 9 expert professionals from urban and rural regions of Ontario, Canada. Parent-defined

Indexed as

autism spectrum disordercaregiverhealthcare consumerparentPatient engagement

Identifiers

PMID34040836
PMCPMC8114413
OpenAlexW2904420450

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.