ArticlePatient preference and adherence2021
Development of Japanese Versions of the Control Preferences Scale and Information Needs Questionnaire: Role of Decision-Making and Information Needs for Japanese Breast Cancer Patients.
Article in Patient preference and adherence, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- A randomized controlled trial on the effects of decision aids for choosing discharge destinations of older stroke patients.PloS one · 2024Trial
- Barriers and Facilitators to Shared Decision-Making in EGFRm Non-Small Cell Lung Cancer: Patient Perspectives.Patient preference and adherence · 2026Article
- Shared decision-making in patients with gynecological cancer and healthcare professionals: a cross-sectional observational study in Japan.Journal of gynecologic oncology · 2025Observational
- Translation and cultural adaption of the control preference scale across various care settings in a Danish hospital.Journal of patient-reported outcomes · 2024Article
- Patient perspectives on treatment for mantle cell lymphoma and chronic lymphocytic leukemia in Japan.Journal of clinical and experimental hematopathology : JCEH · 2024Article
- Patient Preferences Influencing Treatment Decision-Making in Early-Stage Breast Cancer in Germany, Italy, and Japan.Patient preference and adherence · 2024Article
- Shared decision-making in physiotherapy: a cross-sectional study of patient involvement factors and issues in Japan.BMC medical informatics and decision making · 2023Article
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Authors and funding
9 authors.
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Abstract
purposeThe importance of shared decision-making (SDM) between physicians and patients is increasingly recognized. In Japan, patients have shown more willingness to participate in treatment if medical professionals provide sufficient information; however, relationships between physicians and patients have traditionally been asymmetric, with patients accepting information from physicians without discussion. To explore the benefits of SDM in cancer treatment, including confidence in treatment decisions, satisfaction with treatment, and trust in healthcare providers, this study developed Japanese versions of the Control Preference Scale (CPS) and Information Needs Questionnaire (INQ). PATIENTS AND
methodsReliability and validity of the CPS and INQ were tested with 49 breast cancer patients.
resultsThe CPS showed good test-retest reliability (kappa coefficient: 0.61, weighted kappa coefficient: 0.61, Kendall's tau coefficient: 0.61) and acceptable criterion validity. The INQ showed adequate consistency; the mean number of circular triads and coefficient of consistency were 3 (range 0-19) and 0.9 (range 0.37-1), respectively. Using the CPS and INQ to identify patients' roles in decision-making and information needs, results further suggested that breast cancer patients in Japan want to participate in SDM. Medical issues, including disease spread and cure, were found to be of high interest, while social and psychological issues, including sexual attractiveness, genetic risk, and family impact, tended to be low.
conclusionThe Japanese CPS and INQ can be used to assess patients' needs to improve care. Further, as patients' information needs change along the care trajectory, these tools should be used throughout treatment.
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