Evidence map›Paper›PMID 34021425›Full record

SynthesisDigestive diseases and sciences2022

Patient Perspectives and Expectations in Inflammatory Bowel Disease: A Systematic Review.

Alex Al Khoury, Bhairavi Balram, Talat Bessissow, Waqqas Afif, Lorant Gonczi, Maria Abreu, Peter L Lakatos

Abstract readSystematic Review
PubMed Full text at PMC Publisher
In one paragraph

Synthesis in Digestive diseases and sciences, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
36citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

36 citing papers in PubMed, 1 synthesis or guideline pooled it.

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  17. Framework of IBD Care Delivery Across Ages.Journal of Crohn's & colitis · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Alex Al Khoury *University of Miami Miller School of Medicine, Gastroenterology, Miami, USA.
Bhairavi Balram *Division of Gastroenterology, University of Alberta, 130 University Campus NW, Edmonton, AB, Canada.
Talat BessissowDivision of Gastroenterology, Department of Medicine, McGill University, Montreal, Canada.
Waqqas AfifDivision of Gastroenterology, Department of Medicine, McGill University, Montreal, Canada.
Lorant GoncziFirst Department of Medicine, Semmelweis University, Budapest, Hungary.
Maria AbreuUniversity of Miami Miller School of Medicine, Gastroenterology, Miami, USA.
Peter L LakatosDivision of Gastroenterology, Department of Medicine, McGill University, Montreal, Canada. Peter.Lakatos@muhc.mcgill.ca.ORCID 0000-0002-3948-6488

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundIn this systematic review, our objective was to assess inflammatory bowel disease (IBD) patient preferences and perspectives relating to their disease diagnosis, treatment, knowledge needs and telemedicine.

methodsThis study was conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. Four databases and conference proceedings were searched between January 1, 1980, and May 1, 2020. The methodological quality of the included studies was assessed using the Standards for reporting qualitative research checklist.

resultsOur search identified 240 citations and 52 studies met the inclusion criteria. The major expectations of the patients are symptomatic and pain control, quality of life and normal endoscopy. Patients' main concerns are access to information and healthcare, and shared decision making. At the time of diagnosis, patients expressed a greater need for knowledge about their IBD, preferentially by their treating gastroenterologist. The main treatment expectations in active disease are efficacy, safety and convenience. Patients are willing to accept relatively high risks of complications from medical therapy to avoid a permanent ostomy and to achieve durable remission. Patients are more interested in disease monitoring, research and development during the time of remission. Telemedicine and self-management with supervised e-health tools are feasible and acceptable amongst patients with IBD.

conclusionThis systematic review demonstrates that patients with IBD expect more information about their disease process, shared decision making and symptom control. Further research is needed to help align patient and physician expectations in order to improve the quality of care provided to patients with IBD.

Indexed as

Inflammatory Bowel DiseasesTelemedicineChronic DiseaseHumansMotivationQuality of LifeAccessPatient perspectivesPatient preferencesShared decision makingSystematic reviewTelemedicine

Identifiers

PMID34021425
PMCPMC8139371

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.