ArticlePalliative medicine2021
'Traversing difficult terrain'. Advance care planning in residential aged care through multidisciplinary case conferences: A qualitative interview study exploring the experiences of families, staff and health professionals.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers, 3 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Experiences and perspectives of older adults in nursing homes and their families participating in advance care planning: a meta-synthesis of qualitative studies.BMC palliative care · 2025Pooled it
- Family perspectives on and experiences with advance care planning in nursing homes: A thematic synthesis.Journal of advanced nursing · 2025Pooled it
- Patient and family perspectives on rural palliative care models: A systematic review and meta-synthesis.Palliative medicine · 2024Pooled it
- Willingness to participate in advance care planning among older adults with relatively high educational attainment in a continuing care retirement community of the Beijing-Tianjin-Hebei region: a qualitative study.BMC palliative care · 2026Article
- Family perceptions of palliative care consultations for nursing home residents.BMC palliative care · 2026Article
- Does the role of family meetings important at the end-of-life? A retrospective national study in Taiwan.BMC palliative care · 2024Observational
- Psychometric testing of the training needs for advance care planning scale for clinicians and nurses.BMC nursing · 2024Article
- Developing a question prompt list for family caregivers concerning the progression and palliative care needs of nursing home residents living with dementia.PEC innovation · 2023Article
- Article
- The explorations of the awareness, contemplation, self-Efficacy, and readiness of advance care planning, and its predictors in Taiwanese patients while receiving hemodialysis treatment.BMC palliative care · 2022Article
- Family Meetings in Palliative Care: Benefits and Barriers.Current treatment options in oncology · 2022Review
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAdvance care planning improves the quality of end-of-life care for older persons in residential aged care; however, its uptake is low. Case conferencing facilitates advance care planning.
aimTo explore the experience of participating in advance care planning discussions facilitated through multidisciplinary case conferences from the perspectives of families, staff and health professionals.
designA qualitative study (February-July 2019) using semi-structured interviews.
settingTwo residential aged care facilities in one Australian rural town.
participantsFifteen informants [family (
resultsAdvance care planning was like navigating an emotional landscape while facing the looming loss of a loved one. This emotional burden was exacerbated for substitute decision-makers, but made easier if the resident had capacity to be involved or had previously made their wishes clearly known. The 'conversation' was not a simple task, and required preparation time. Multidisciplinary case conferences facilitated informed decision-making and shared responsibility. Opportunity to consider all care options provided families with clarity, control and a sense of comfort. This enabled multiple stakeholders to bond and connect around the resident.
conclusionWhile advance care planning is an important element of high quality care it involves significant emotional labour and burden for families, care staff and health professionals. It is not a simple administrative task to be completed, but a process that requires time and space for reflection and consensus-building to support well-considered decisions. Multidisciplinary case conferences support this process.
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