Evidence map›Paper›PMID 34014585›Full record

ArticleChild: care, health and development2021

Professionals' motivation to support parental self-management regarding children with physical disability in Dutch rehabilitation services: 'Please mind your gap'.

Ruud Wong Chung, Agnes Willemen, Jeanine Voorman, Marjolijn Ketelaar, Jules Becher, Carlo Schuengel

Open access · hybridAbstract read
In one paragraph

Article in Child: care, health and development, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.7field-weighted citation impact, top 26% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 4 institutions in 1 country.

Ruud Wong ChungMerem Medical Rehabilitation, Almere, The Netherlands.ORCID 0000-0003-3282-2861
Agnes WillemenAmsterdam Public Health research institute and Department of Educational and Family studies, Faculty of Behavioural and Movement Sciences, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0002-0912-2608
Jeanine VoormanCentre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht and De Hoogstraat Rehabilitation Utrecht, Utrecht, The Netherlands.
Marjolijn KetelaarCentre of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Centre, University Medical Centre Utrecht and De Hoogstraat Rehabilitation Utrecht, Utrecht, The Netherlands.ORCID 0000-0002-8324-518X
Jules BecherAmsterdam Movement Sciences and Department of Rehabilitation Medicine, Amsterdam UMC, VU Medical Centre, Amsterdam Movement Sciences, Amsterdam, The Netherlands.ORCID 0000-0003-3046-4255
Carlo SchuengelAmsterdam Public Health research institute and Department of Educational and Family studies, Faculty of Behavioural and Movement Sciences, Vrije Universiteit Amsterdam, Amsterdam, The Netherlands.ORCID 0000-0001-5501-3341
University Medical Center Utrecht · NLVrije Universiteit Amsterdam · NLAmsterdam Neuroscience · NLMerem · NL

Funding

GKZ foundation (Stichting Goois Kinderziekenhuis)Phelps Foundation
6 · The paper itself

Abstract

backgroundProfessionals in child healthcare increasingly endorse the support of self-management in paediatric rehabilitation services for children with physical disability. Less understood though are their views regarding the role of the children's parents, as well as their own role in supporting parents. This study aimed to investigate the motivation of rehabilitation professionals to support self-management of parents regarding their child with physical disability, professionals' beliefs about parental self-management, and the perceptions underlying their motivation.

methodsA mixed-methods strategy was followed using a survey among rehabilitation professionals (n = 175) and consecutive semi-structured interviews (n = 16). Associations between autonomous (intrinsic) versus controlled (extrinsic) motivation and beliefs on parental self-management were tested. For deeper understanding of their motivation, directed content analysis was used to address key themes in the qualitative data extracts.

resultsProfessionals reported autonomous motivation for parental self-management support more often than controlled motivation (t[174] = 29.95, p < .001). Autonomous motivation was associated with the beliefs about the importance of parental self-management (r = .29, p < .001). Approximately 90% of the professionals believed that parents should have an active role, though less than 10% considered it important that parents also are independent actors and initiative takers in the rehabilitation process. Interviews revealed that individual professionals struggled with striking a balance between keeping control and 'giving away responsibility' to parents. A 'professional-like' attitude was expected of parents with 'involvement' and 'commitment' as essential preconditions. Furthermore, professionals expressed the need for additional coaching skills to support parental self-management.

conclusionProfessionals were predominantly autonomously motivated to support self-management of parents. However, the dilemmas in giving or taking responsibilities within the partnership with parents may limit their effectiveness in empowering parents. Reflection on the potential gaps between professionals' motivation, beliefs and actual behaviour might be crucial to support parental self-management.

Indexed as

MotivationSelf-ManagementChildFamilyHumansParentsProfessional-Family RelationsQualitative Researchcoaching skillsmotivationpaediatric rehabilitationparental self-management supportpartnershipprofessionals' beliefs

Identifiers

PMID34014585
PMCPMC8453492
OpenAlexW3162305127

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.