Evidence map›Paper›PMID 34014170›Full record

ArticleJournal of medical Internet research2021

A Real-World Rheumatology Registry and Research Consortium: The German RheumaDatenRhePort (RHADAR) Registry.

Stefan Kleinert, Peter Bartz-Bazzanella, Cay von der Decken, Johannes Knitza, Torsten Witte, Sándor P Fekete, Matthias Konitzny, Alexander Zink, Georg Gauler, Patrick Wurth and 9 more

Abstract read
In one paragraph

Article in Journal of medical Internet research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed.

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  13. "International journal of environmental research and public health · 2022
    Article
  14. Review
  15. Article
  16. Frontiers in medicine · 2022
    Article
  17. Article
  18. [Digital diagnostic support in rheumatology].Zeitschrift fur Rheumatologie · 2021
    Review
  19. [Digitalization in rheumatological practice].Zeitschrift fur Rheumatologie · 2021
    Review
  20. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors.

Stefan KleinertPraxisgemeinschaft Rheumatologie-Nephrologie, Erlangen, Germany.ORCID 0000-0002-2588-7547
Peter Bartz-BazzanellaMedizinisches Versorgungszentrum Stolberg, Stolberg, Germany.ORCID 0000-0001-8084-4497
Cay von der DeckenMedizinisches Versorgungszentrum Stolberg, Stolberg, Germany.ORCID 0000-0001-9780-7174
Johannes KnitzaDepartment of Internal Medicine 3 - Rheumatology and Immunology, Friedrich-Alexander-University Erlangen-Nürnberg, University Hospital Erlangen, Erlangen, Germany.ORCID 0000-0001-9695-0657
Torsten WitteDepartment of Rheumatology and Clinical Immunology, Hanover Medical School, Hanover, Germany.ORCID 0000-0003-4531-0267
Sándor P FeketeDepartment of Computer Science, TU Braunschweig, Braunschweig, Germany.ORCID 0000-0002-9062-4241
Matthias KonitznyDepartment of Computer Science, TU Braunschweig, Braunschweig, Germany.ORCID 0000-0003-3196-2694
Alexander ZinkDepartment of Dermatology and Allergy, School of Medicine, Technical University of Munich, Munich, Germany.ORCID 0000-0001-9313-6588
Georg GaulerRheumatologische Schwerpunktpraxis, Osnabrück, Germany.ORCID 0000-0002-2132-8369
Patrick WurthRheumatologische Schwerpunktpraxis, Osnabrück, Germany.ORCID 0000-0002-4624-1788
Peer AriesRheumatologie im Struenseehaus, Hamburg, Germany.ORCID 0000-0001-7919-8010
Kirsten KarbergPraxis für Rheumatologie und Innere Medizin, Berlin, Germany.ORCID 0000-0002-1362-7326
Christoph KuhnPraxis für Rheumatologie, Karlsruhe, Germany.ORCID 0000-0002-0538-1717
Florian SchuchPraxisgemeinschaft Rheumatologie-Nephrologie, Erlangen, Germany.ORCID 0000-0002-2543-0491
Susanna Späthling-MestekemperRheumatologist in Group Practice, Munich, Germany.ORCID 0000-0003-1356-5601
Wolfgang VorbrüggenVerein zur Förderung der Rheumatologie eV, Würselen, Germany.ORCID 0000-0003-1076-5560
Matthias EnglbrechtFreelance Healthcare Data Scientist, Eckental, Germany.ORCID 0000-0003-0228-7183
Martin WelckerMedizinisches Versorgungszentrum für Rheumatologie Dr M Welcker GmbH, Planegg, Germany.ORCID 0000-0002-1856-3085
RHADAR Group *see Acknowledgments, .

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Real-world data are crucial to continuously improve the management of patients with rheumatic and musculoskeletal diseases (RMDs). The German RheumaDatenRhePort (RHADAR) registry encompasses a network of rheumatologists and researchers in Germany providing pseudonymized real-world patient data and allowing timely and continuous improvement in the care of RMD patients. The RHADAR modules allow automated anamnesis and adaptive coordination of appointments regarding individual urgency levels. Further modules focus on the collection and integration of electronic patient-reported outcomes in between consultations. The digital RHADAR modules ultimately allow a patient-centered adaptive approach to integrated medical care starting as early as possible in the disease course. Such a closed-loop system consisting of various modules along the whole patient pathway enables comprehensive and timely patient management in an unprecedented manner.

Indexed as

Musculoskeletal DiseasesRheumatic DiseasesRheumatologyGermanyHumansRegistriespatient-reported outcomesreal-world dataregistryrheumatologysymptom checker

Identifiers

PMID34014170
PMCPMC8176344

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.