Evidence map›Paper›PMID 34007882›Full record

ArticleInternational journal of population data science2020

A framework for centering racial equity throughout the administrative data life cycle.

Amy L Hawn Nelson, Sharon Zanti

Abstract read
In one paragraph

Article in International journal of population data science, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

  1. Digital health equity frameworks and key concepts: a scoping review.Journal of the American Medical Informatics Association : JAMIA · 2025
    Article
  2. Article
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  4. Article
  5. Article
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  7. Four questions to guide decision-making for data sharing and integration.International journal of population data science · 2023
    Article
  8. Article
  9. COVID-19: A case for the collection of race data in Canada and abroad.Canada communicable disease report = Releve des maladies transmissibles au Canada · 2021
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

2 authors.

Amy L Hawn NelsonUniversity of Pennsylvania.
Sharon ZantiUniversity of Pennsylvania.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionData integration by local and state governments is undertaken for the public good to support the interconnected needs of families and communities. Though data infrastructure is a powerful tool to support equity-oriented reforms, racial equity is rarely centered or prioritized as a core goal for data integration. This raises fundamental concerns, as integrated data increasingly provide the raw materials for evaluation, research, and risk modeling. Generally, institutions have not adequately examined and acknowledged structural bias in their history, or the ways in which data reflect systemic racial inequities in the development and administration of policies and programs. Meanwhile, civic data users and the public are rarely consulted in the development and use of data systems.

objectivesThis paper presents a framework and site-based examples of "Work in Action" that were collaboratively generated by a civic data stakeholder workgroup from across the U.S. in 2019-2020.

methodsPurposive sampling was used to curate a diverse 15-person workgroup that used participatory action research and public deliberation to co-create a framework of best practices.

resultsThis framework aims to support agencies seeking to acknowledge and compensate for the harms and bias baked into data and practice. It is organized across six stages of the administrative data life cycle-planning, data collection, data access, use of algorithms/statistical tools, analysis, and reporting and dissemination. For each stage, the framework includes positive and problematic practices for centering racial equity, with site-based examples of "Work in Action" from across the U.S. Using this framework, the workgroup then developed a Toolkit for Centering Racial Equity Throughout Data Integration, a resource that has been broadly disseminated across the U.S.

conclusionsFindings indicate that centering racial equity within data integration efforts is not a binary outcome, but rather a series of small steps towards more equitable practice. There are countless ways to center racial equity across the data life cycle, and this framework provides concrete strategies for organizations to begin to grow that work in practice.

Indexed as

data integrationKeywords racial equityparticipatory action researchpublic deliberation

Identifiers

PMID34007882
PMCPMC8110889

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.