ReviewAfrican journal of disability2021
African families' and caregivers' experiences of raising a child with intellectual disability: A narrative synthesis of qualitative studies.
Review in African journal of disability, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
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Who cites it
22 citing papers in PubMed.
- Perceptions and experiences of caretakers of children with neurologic deficits after severe malaria in Uganda.International journal of qualitative studies on health and well-being · 2026Article
- Parenting Style and Mental Health of Parents Raising Children with Intellectual Disabilities in Ghana.Journal of autism and developmental disorders · 2026Article
- Socio-genomics of intellectual disability in African populations: top research-producing countries.Journal of community genetics · 2026Review
- Empowerment of Youth With Intellectual Disabilities Through Inclusive Research in Africa.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Systemic Barriers and Emotional Complexities in the Transition to Adulthood: The Lived Experience of Parents of Individuals With Intellectual Disabilities in Italy.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Caregiver Concerns for Children and Adolescents With Down Syndrome: A Cross-Sectional Study in Brazil.Child: care, health and development · 2026Article
- Intellectual Disability Support: Traditional Healers' Views on Collaboration with Western-Trained Healthcare Practitioners.Transcultural psychiatry · 2026Article
- Caregiver beliefs and practices about communication disorders in early childhood development centres from Durban: A qualitative study.BMJ public health · 2026Article
- Psychosocial and caregiving challenges of mothers of children with disabilities in Iran: a qualitative study.BMC psychology · 2025Article
- Caregivers' Experience of Supporting Deaf Adults with Mental Health Disorders in Ghana.International journal of environmental research and public health · 2025Article
- A training program to extend the reach of the deciphering developmental disorders in Africa (DDD-Africa) study.Frontiers in genetics · 2025Article
- Caring by default: experiences of caregivers of children with developmental disabilities in Ghana mirrored in the context of the stress process model.BMC nursing · 2024Article
- Creating Family-Centred Support for Preschoolers with Developmental Disabilities in Low-Income Countries: A Rapid Review to Guide Practitioners.International journal of environmental research and public health · 2024Review
- Starting a cultural collective for mothers of children with disabilities: A case study.African journal of disability · 2024Article
- Supporting Depressed Mothers of Young Children with Intellectual Disability: Feasibility of an Integrated Parenting Intervention in a Low-Income Setting.Children (Basel, Switzerland) · 2023Article
- The experiences of parents raising children with developmental disabilities in Ethiopia.Autism : the international journal of research and practice · 2023Article
- Respite care models and practices for persons with intellectual disability: A scoping review.African journal of disability · 2023Article
- Adapting Attachment and Biobehavioral Catch-up for infants and young children with intellectual disabilities and developmental delays in South Africa: Reflections and recommendations from local stakeholders.Infant mental health journal · 2023Article
- Developing a psychoeducational programme for caregivers of people with intellectual disability.African journal of disability · 2023Article
- Article
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe prevalence of intellectual disability was high in Africa, particularly amongst low socio-economic communities. Despite this, there was limited literature on primary caregivers and parents of people with intellectual disabilities regarding their experience raising an individual with the condition, especially within the African context.
objectivesThe aim of the current systematic review was to investigate experiences of caregivers and parents of children with intellectual disability in Africa.
methodWe used strict eligibility criteria to identify suitable studies. We identified Medical Subject Headings (MeSH) terms and other keyword terms and, after conducting searches in electronic databases, identified articles that met the inclusion criteria for articles published between 1975 and the end of 2019.
results164 articles were assessed for eligibility. Nine studies met the review's criteria. Six major themes emerged: understanding of intellectual disability (ID), worries about the future, burden of care, lack of services, coping strategies and stigma and discrimination.
conclusionCaregivers of children with intellectual disability in Africa faced substantial challenges. Current findings suggested that there was the need for both formal and alternative healthcare workers to work together towards an understanding and management of intellectual disability in Africa.
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