Evidence map›Paper›PMID 34001165›Full record

ArticleHealth and quality of life outcomes2021

Development and preliminary psychometric investigation of the German Satisfaction with Comprehensive Cancer Care (SCCC) Questionnaire.

Peter Esser, Leon Sautier, Susanne Sarkar, Georgia Schilling, Carsten Bokemeyer, Uwe Koch, Michael Friedrich, Gautier Defossez, Anja Mehnert-Theuerkauf

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Health and quality of life outcomes, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. Trial
  3. Article
  4. Observational
  5. Article
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Peter EsserDepartment of Medical Psychology and Medical Sociology, University Medical Center Leipzig, Leipzig, Germany. Peter.Esser@medizin.uni-leipzig.de.ORCID http://orcid.org/0000-0002-4944-8020
Leon SautierDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Susanne SarkarClinical Psychology and Psychotherapy, Institute of Psychology, Faculty of Psychology and Movement Sciences, University of Hamburg, Hamburg, Germany.
Georgia Schilling"Hubertus Wald" Tumor Centre, University Cancer Center Hamburg (UCCH), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Carsten BokemeyerDepartment of Internal Medicine II, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Uwe KochDepartment of Medical Psychology, University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Michael FriedrichDepartment of Medical Psychology and Medical Sociology, University Medical Center Leipzig, Leipzig, Germany.
Gautier DefossezUFR Médecine Et Pharmacie, Université de Poitiers, Poitiers, France.
Anja Mehnert-TheuerkaufDepartment of Medical Psychology and Medical Sociology, University Medical Center Leipzig, Leipzig, Germany.

Funding

Bundesministerium für Gesundheit NKP-332-058
6 · The paper itself

Abstract

purposeThe assessment of patient satisfaction during treatment is essential to provide patient-centered high-quality cancer care. Nevertheless, no German instrument assesses patient satisfaction with comprehensive cancer care, which not only includes oncological treatment, but also interpersonal quality of care as well as psychosocial support services. Based on the French REPERES-60, we developed the German Patient Satisfaction with Comprehensive Cancer Care (SCCC) questionnaire.

methodsThe REPERES-60 was translated and the items were adapted to make it applicable to the German healthcare system and across different tumor entities. Scales of the resulting instrument were extracted via principal axis factoring (PAF). Subsequently, we investigated the reliability (Cronbach's Alpha, CA), discriminatory power (corrected item-scale correlations) and convergent validity (pre-specified correlations of the SCCC with different outcomes).

resultsThe SCCC consisted of 32 items which were subsequently tested among a sample of 333 patients across different tumor entities (response rate: 47%). Average age was 59 years (standard deviation: 14), 63% were male. PAF revealed four multi-item scales named Competence, Information, Access and Support accounting for 71% of the variance. Two single-items scales assess global satisfaction with medical and psychosocial care, respectively. CA across the multi-item scales ranged from .84 to .96. Discriminatory power was sufficiently high, with all r ≥ .5. Convergent validity was largely verified by negative associations of the four multi-item scales with depressive/anxious symptomatology (r ≥ - .18, p < .01) and fatigue/overall symptom burden (r ≥ - .14, p < .01).

conclusionWe developed a tool to assess patient satisfaction with comprehensive cancer care in Germany. The SCCC showed satisfactory psychometric properties. Further studies are needed to verify these preliminary findings.

Indexed as

Personal SatisfactionAdolescentAdultAgedAged, 80 and overFemaleFranceGermanyHumansMaleMiddle AgedNeoplasmsPatient SatisfactionPsychometricsQuality of LifeReproducibility of ResultsCancerNeoplasmPatient-reported outcomesPatient satisfactionValidation

Identifiers

PMID34001165
PMCPMC8130117

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.