ArticlePalliative medicine2021
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Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
20 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Chinese Diaspora Communities' Knowledge of and Engagement with Advance Care Planning: A Systematic Integrative Review.Journal of palliative care · 2023Pooled it
- Family involvement in advance care planning for people living with advanced cancer: A systematic mixed-methods review.Palliative medicine · 2022Pooled it
- Team-Based Versus Technology-Based Supportive Cancer Care: A Mixed Methods Study of Multi-Site Implementation.Journal of the National Comprehensive Cancer Network : JNCCN · 2025Trial
- Effect of motivational interviewing to promote advance care planning among palliative care patients in ambulatory care setting: a randomized controlled trial.BMC palliative care · 2025Trial
- Complex advance care planning intervention in general practice (ACP-GP): a cluster-randomised controlled trial.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Trial
- Experiences of Older Adults with Frailty Not Completing an Advance Directive: A Qualitative Study of ACP Conversations.International journal of environmental research and public health · 2022Trial
- The Role of Advance Care Planning on Community Dwelling Adults' Coping Abilities and Death Attitudes: A Sequential Mixed-Methods Study.Journal of clinical nursing · 2026Article
- Navigating the path to planned endings: understanding Chinese older adults' engagement with advance care planning through constructivist grounded theory.BMC medical ethics · 2025Article
- Factors Influencing Knowledge, Attitudes and Behaviour Towards Engaging with Advance Care Planning: A Cross-Sectional Survey of Chinese Diaspora.Journal of palliative care · 2025Article
- Do not attempt cardiopulmonary resuscitation practice and policy in Ireland: a mixed-methods study of service user and advocacy group perspectives.Health research policy and systems · 2025Article
- Article
- Advance care planning before and during the COVID-19 pandemic: an observational cohort study of 73 675 patients' records.BJGP open · 2024Article
- Public attitudes to emergency care treatment plans: a population survey of Great Britain.BMJ open · 2024Article
- Building public engagement and access to palliative care and advance care planning: a qualitative study.BMC palliative care · 2024Article
- Complexity and function of family involvement in advance care planning: A qualitative study of perspectives from people living with advanced cancer, family members and healthcare professionals.Palliative medicine · 2023Article
- Public perceptions of advance care planning (ACP) from an international perspective: a scoping review.BMC palliative care · 2023Article
- Patient and Caregiver Expression of Reluctance and Ambivalence During Palliative Care Encounters.Journal of palliative medicine · 2023Article
- Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Article
- COVID-19 as a Catalyst for Teaching Advance Care Planning.ATS scholar · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInternationally, participation in advance care planning is low. Whilst a community action approach is advocated, what the public know and understand about advance care planning is unknown.
aimTo assess public awareness, knowledge and attitudes towards advance care planning and identify strategies to raise awareness within a public health framework.
designSequential mixed methods comprising a cross-sectional survey and focus group/interviews. SETTING/
participantsA random representative sample of adults from one region of the United Kingdom (
resultsMost participants (78.7%) acknowledged the benefits of advance care planning conversations, however, two thirds did not want to think about advance care planning or find out more at present. Respondents were reluctant to broach advance care planning as it was linked to end of life care and funeral plans, and they did not wish to cause distress to their loved one. Respondents trusted their family to respect their wishes and they considered having an advance care plan in place would be of assistance in the future. Top-down leadership, normalisation, and increased education were identified as potential approaches to overcome barriers.
conclusionsAdvance care planning was recognised as important despite limited awareness, lack of knowledge and misperceptions. Whilst a community action approach to enhance understanding and engagement was supported, a 'one size fits all' approach will not work; rather bespoke targeting is required with educational and media messaging aligned.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.