ArticleMayo Clinic proceedings. Innovations, quality & outcomes2021
Patient Work and Treatment Burden in Type 2 Diabetes: A Mixed-Methods Study.
Article in Mayo Clinic proceedings. Innovations, quality & outcomes, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 2 of them syntheses that pooled it.
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Who cites it
22 citing papers in PubMed, 2 syntheses or guidelines pooled it, 29 citations in OpenAlex.
- Impact of Digital Interventions on the Treatment Burden of Patients With Chronic Conditions: Systematic Review.Journal of medical Internet research · 2025Pooled it
- Measuring treatment burden in people with Type 2 Diabetes Mellitus (T2DM): a mixed-methods systematic review.BMC primary care · 2024Pooled it
- Treatment burden and health-related quality of life in young adults with type 1 diabetes.Diabetic medicine : a journal of the British Diabetic Association · 2026Article
- Adaptation and psychometric validation of treatment burden questionnaire for caregivers of older adults with diabetes and dementia.Aging & mental health · 2026Article
- Latent profiles analysis of Traditional Chinese Medicine Health Literacy in middle-aged and older adult patients with chronic diseases and its association with disease burden and self management.Frontiers in public health · 2026Article
- Workload-capacity imbalances and their impact on self-management complexity in patients with multimorbidity: a multicenter cross-sectional study.Annals of medicine · 2025Article
- Patient administrative burden: a scoping review.Health affairs scholar · 2025Review
- Medication-related burden variation across chronic conditions: a population-based cross-sectional survey.BMC health services research · 2025Article
- Primary care insights on the management of diabetes: results from a mixed method study of care changes and impacts during the COVID-19 pandemic.Family practice · 2025Article
- Adapting a Text Messaging Intervention to Improve Diabetes Medication Adherence in a Spanish-Speaking Population: Qualitative Study.JMIR human factors · 2025Article
- Primary Care Physicians' Responses to Treatment Burden in People With Type 2 Diabetes: A Qualitative Video Analysis in China.Annals of family medicine · 2025Article
- Home self-management of type 2 diabetes with diabetes technologies in northern France: a focused ethnographic study protocol.BMJ open · 2024Article
- Exploring treatment burden in people with type 2 diabetes mellitus: a thematic analysis in china's primary care settings.BMC primary care · 2024Review
- Treatment burden and regimen fatigue among patients with HIV and diabetes attending clinics of Tikur Anbessa specialized hospital.Scientific reports · 2024Article
- Impact of Social Vulnerability on Diabetes-Related Cardiovascular Mortality in the United States.Journal of the American Heart Association · 2023Article
- Theoretical Underpinnings of a Model to Reduce Polypharmacy and Its Negative Health Effects: Introducing the Team Approach to Polypharmacy Evaluation and Reduction (TAPER).Drugs & aging · 2023Article
- Assessing collaborative efforts of making care fit for each patient: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Review
- Shared decision-making as a method of care.BMJ evidence-based medicine · 2023Article
- US practice adoption of patient-engagement strategies and spending for adults with diabetes and cardiovascular disease.Health affairs scholar · 2023Article
- Understanding the treatment burden of people with chronic conditions in Kenya: A cross-sectional analysis using the Patient Experience with Treatment and Self-Management (PETS) questionnaire.PLOS global public health · 2023Article
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Authors and funding
11 authors at 7 institutions in 4 countries.
Funding
Abstract
objectiveTo use quantitative and qualitative methods to characterize the work patients with type 2 diabetes mellitus (T2DM) enact and explore the interactions between illness, treatment, and life. PATIENTS AND
methodsIn this mixed-methods, descriptive study, adult patients with T2DM seen at the outpatient diabetes clinic at Mayo Clinic in Rochester, Minnesota, from February 1, 2016, through March 31, 2017, were invited to participate. The study had 3 phases. In phase 1, the Patient Experience with Treatment and Self-management (PETS) scale was used to quantify treatment burden. In phase 2, a convenience sample of patients used a smartphone application to describe, in real time, time spent completing diabetes self-management tasks and to upload descriptive digital photographs. In phase 3, these data were explored in qualitative interviews that were analyed by 2 investigators using deductive analysis.
resultsOf 162 participants recruited, 160 returned the survey (phase 1); of the 50 participants who used the smartphone application (phase 2), we interviewed 17 (phase 3). The areas in which patients reported highest treatment burden were difficulty with negotiating health services (eg, coordinating medical appointments), medical expenses, and mental/physical exhaustion with self-care. Participants reported that medical appointments required about 2.5 hours per day, and completing administrative tasks related to health care required about 45 minutes. Time spent on health behaviors varied widely-from 2 to 60 minutes in a given 3-hour period. Patients' experience of a task's burden did not always correlate with the time spent on that task.
conclusionThe most burdensome tasks to patients with T2DM included negotiating health care services, affording medications, and completing administrative tasks even though they were not the most time-consuming activities. To be minimally disruptive, diabetes care should minimize the delegation of administrative tasks to patients.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.