ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Adolescent and young adult patients as co-researchers: A scoping review.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 19 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Adolescents' perspectives and experiences of accessing general practitioner services: A systematic review.Journal of child health care : for professionals working with children in the hospital and community · 2025Pooled it
- An umbrella review of reviews on challenges to meaningful adolescent involvement in health research.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Evaluating Empowerment in Adolescents with a Disability and/or Chronic Condition from Neurology and Orthopedic Clinics: A Mixed-Methods Study.Journal of pediatrics. Clinical practice · 2026Article
- Better Design, Better Engagement, Better Data: Adolescents' Insights for Improving Health Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- How Are Adolescents Participating in the Transformation of Healthy Food Environments? A Scoping Review of Empirical Research.Obesity reviews : an official journal of the International Association for the Study of Obesity · 2026Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Promoting Youth Mental Wellbeing: A Photovoice Project with Adolescents and Young Adults in the Hospital Context.International journal of environmental research and public health · 2025Article
- A Trauma Support App for Young People: Co-design and Usability Study.JMIR formative research · 2025Article
- Article
- Empowerment in Adolescent Patients with a Disability/Chronic Condition: A Scoping Review.Children (Basel, Switzerland) · 2024Review
- Benefits, barriers and recommendations for youth engagement in health research: combining evidence-based and youth perspectives.Research involvement and engagement · 2024Review
- Co-production of health and social science research with vulnerable children and young people: A rapid review.Health expectations : an international journal of public participation in health care and health policy · 2024Review
- Ethical and methodological challenges conducting participative research with transgender and gender-diverse young people: a systematic review.International journal of transgender health · 2024Review
- Corrigendum.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- A Blueprint for Involvement: Reflections of lived experience co-researchers and academic researchers on working collaboratively.Research involvement and engagement · 2022Article
- Developing a More Tailored Approach to Patient and Public Involvement with Children and Families in Pediatric Clinical Research: Lessons Learned.Therapeutic innovation & regulatory science · 2022Review
- Involvement of adolescent representatives and coresearchers in mental health research: Experiences from a research project.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Adolescent and young adult patients as co-researchers: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- Article
Corrections and comments
- Erratum issuedCorrigendum.2023
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundAs part of a research project aimed at evaluating a hospital-based adolescent transition programme, we asked ourselves what is known about the ethical and methodological challenges of research involving adolescent patients as co-researchers. The aim of our review was to summarize empirical evidence and identify knowledge gaps about the involvement of young patients as co-researchers.
methodsWe conducted a scoping review through searches in MEDLINE, EMBASE, PsychINFO, AMED.
resultsWe found reports of young patients being actively engaged as co-researchers in any stage of a research project, although commonly they were not involved in every stage. Including young patients as co-researchers is resource demanding and time-consuming. Involving young patients as co-researchers contributes to the fulfilment of their right to participation and may improve the relevance of research. Benefits for the young co-researcher include empowerment, skills building and raised self-esteem. Few authors go into detail about ethical considerations when involving young co-researchers. None of the included articles discuss legal considerations. DISCUSSION AND
conclusionNo lists of recommendations are given, but recommendations can be deduced from the articles. There is need for time, funding and flexibility when including young patients as co-researchers. Knowledge gaps concern legal and ethical dilemmas of including a vulnerable group as co-researchers. More reflection is needed about what meaningful participation is and what it entails in this context. PATIENT OR PUBLIC CONTRIBUTION: This review is part of a research project where the hospital youth council has been involved in discussions of focus area and methods.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.