ArticleDysphagia2022
Characterizing Quality of Life in Caregivers of People with Parkinson's Disease and Dysphagia.
Article in Dysphagia, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05898139 (Describe to Better Understand, the Mealtime of People With Parkinson's Disease Dependent on Food Intake), which is not on this map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Describe to Better Understand, the Mealtime of People With Parkinson's Disease Dependent on Food Intake
Who cites it
11 citing papers in PubMed, 19 citations in OpenAlex.
- Acupuncture Therapy on Dysphagia in Patients with Parkinson's Disease: A Randomized Controlled Study.Chinese journal of integrative medicine · 2025Trial
- Psychometric Evaluation of the Turkish Version of the Caregiver Analysis of Reported Experiences with Swallowing Disorders (CARES-TR).Dysphagia · 2026Article
- Consensus expert recommendations for management of dysphagia during hospital admission in Parkinson's disease.Journal of Parkinson's disease · 2026Review
- Perceptions of neuromuscular electrostimulation of patients with Parkinson's disease and their caregivers: the impact on swallowing and speech from a qualitative perspective.Journal of patient-reported outcomes · 2025Article
- Exploring the Neuropsychological Correlates of Swallowing Disorders in People with Parkinson's Disease: a Cross-Sectional Study.Dysphagia · 2025Article
- There is 'no cure for caregiving': the experience of women caring for husbands living with Parkinson's disease.International journal of qualitative studies on health and well-being · 2024Article
- Enhancing Cough Motor Learning in Parkinson's Disease Through Variable Practice During Skill Training.Movement disorders clinical practice · 2024Article
- Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022.Journal of geriatric psychiatry and neurology · 2024Article
- Impact of advanced Parkinson's disease on caregivers: an international real-world study.Journal of neurology · 2023Article
- Swallowing outcomes in dysphagia interventions in Parkinson's disease: a scoping review.BMJ evidence-based medicine · 2023Article
- The New Zealand Parkinson's progression programme.Journal of the Royal Society of New Zealand · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Caring for a family member with dysphagia can negatively impact caregiver wellbeing, although little is known about how dysphagia severity or specific symptoms influence this. The purpose of this study was to examine how objective measures of dysphagia in people with Parkinson's disease influenced their caregivers' quality of life. Fifty caregivers (mainly spouses) of people with Parkinson's disease completed a caregiver quality of life survey. Results were compared to medical chart reviews, interviews, and instrumental evaluations of swallowing from the care recipients. Outcomes included caregiver quality of life score, ratings of airway invasion and pharyngeal residue, and Parkinson's disease duration. Descriptive and regression analyses were completed. All caregivers reported reduced quality of life, with 28% having severely disturbed adaptation. Every care recipient with Parkinson's disease demonstrated airway invasion and/or pharyngeal residue. Together, the combination of older care recipient age and longer disease duration was associated with poorer caregiver quality of life [adj. R
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.