SynthesisJournal of pain and symptom management2021
Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review.
Synthesis in Journal of pain and symptom management, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 48 papers, 5 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
48 citing papers in PubMed, 5 syntheses or guidelines pooled it, 104 citations in OpenAlex.
- Pooled it
- Chinese Diaspora Communities' Knowledge of and Engagement with Advance Care Planning: A Systematic Integrative Review.Journal of palliative care · 2023Pooled it
- Health outcomes in primary care: a 20-year evidence map of randomized controlled trials.Family practice · 2023Pooled it
- Hospice interventions for persons living with dementia, family members and clinicians: A systematic review.Journal of the American Geriatrics Society · 2022Pooled it
- Does ethnicity affect pain management for people with advanced disease? A mixed methods cross-national systematic review of 'very high' Human Development Index English-speaking countries.BMC palliative care · 2022Pooled it
- Predictors of Specialty Outpatient Palliative Care Utilization Among Persons With Serious Illness.Journal of pain and symptom management · 2024Trial
- The Impact of Race and Physician-Patient Racial Concordance on the Incidence of Inpatient Advance Care Planning.Journal of general internal medicine · 2026Observational
- Advance Directive Completion Among Community-Dwelling Adults with Decompensated Cirrhosis.Digestive diseases and sciences · 2026Article
- Ethnicity and awareness, knowledge, and trust in palliative and end-of-life care: Analysis of a nationally representative survey.Future healthcare journal · 2026Article
- Association of performance status, depression, and demographics with advance directive documentation in patients with glioblastoma.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026Article
- From cultural constraints to structural resilience: a comparative analysis of end-of-life care policies in China, South Korea, the U.S., and the U.K.Frontiers in public health · 2026Article
- Adapting Advance Care Planning Interventions for Hispanic Communities Across the U.S.The American journal of hospice & palliative care · 2025Article
- Bridging the ACP literacy gap in Nigeria: A call for community and cross-sector collaboration.Palliative & supportive care · 2025Article
- Advance care planning among stroke patients: A scoping review.International journal of nursing sciences · 2025Review
- Assessing Disparities in Who Accepts an Early Palliative Care Consultation.Current oncology (Toronto, Ont.) · 2025Article
- Factors Influencing Knowledge, Attitudes and Behaviour Towards Engaging with Advance Care Planning: A Cross-Sectional Survey of Chinese Diaspora.Journal of palliative care · 2025Article
- End-of-Life Cancer Care Interventions for Racially and Ethnically Diverse Populations in the USA: A Scoping Review.Cancers · 2025Review
- Trend and Provider- and Organizational-Level Factors Associated With Early Palliative Care Billing Among Patients Diagnosed With Distant-Stage Cancers in 2010-2019 in the United States.Journal of clinical oncology : official journal of the American Society of Clinical Oncology · 2025Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
contextPersons from underrepresented racial and ethnic groups experience disparities in access to and quality of palliative and end-of-life care.
objectivesTo summarize and evaluate existing palliative and end-of-life care interventions that aim to improve outcomes for racial and ethnic underrepresented populations in the United States.
methodsWe conducted a systematic review of the literature in the English language from four databases through January 2020. Peer-reviewed studies that implemented interventions on palliative care, advance care planning, or end-of-life care were considered eligible. Data were extracted from 16 articles using pre-specified inclusion and exclusion criteria. Quality was appraised using the modified Downs and Black tool for assessing risk of bias in quantitative studies.
resultsFive studies were randomized controlled trials, and the remainder were quasi-experiments. Six studies targeted Latino/Hispanic Americans, five African Americans, and five, Asian or Pacific Islander Americans. The two randomized control trials reviewed and rated "very high" quality, found educational interventions to have significant positive effects on advance care planning and advance directive completion and engagement for underrepresented racial or ethnic groups.
conclusionThe effectiveness of advance care planning, end-of-life, and palliative care interventions in improving outcomes for underrepresented racial and ethnic populations remains uncertain. Randomized controlled trials and educational interventions indicate that interventions targeting underrepresented groups can have significant and positive effects on advance directives and/or advance care planning-related outcomes. More high-quality intervention studies that address racial and ethnic health disparities in palliative care are needed, particularly those that address systemic racism and other complex multilevel factors that influence disparities in health.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.