ReviewMovement disorders clinical practice2021
Current Knowledge on the Evolution of Care Partner Burden, Needs, and Coping in Parkinson's Disease.
Review in Movement disorders clinical practice, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Care partner needs in Parkinson's disease: A systematic review of qualitative and quantitative data.Journal of Parkinson's disease · 2025Pooled it
- The subjective experience of family caregivers of people living with Parkinson's disease: a meta-ethnography of qualitative literature.Aging clinical and experimental research · 2022Pooled it
- IN-HOME-PDCaregivers: The effects of a combined home visit and peer mentoring intervention for caregivers of homebound individuals with advanced Parkinson's disease.Parkinsonism & related disorders · 2023Trial
- Enhancing Trial Delivery in Parkinson's Disease: Qualitative Insights from PD STAT.Journal of Parkinson's disease · 2022Trial
- Longitudinal Associations between Depression, Daytime Sleepiness, and Caregiver Strain in Parkinson's Disease.Movement disorders clinical practice · 2026Article
- Care Partners' Information Needs When Caring for a Family Member With Parkinson's Disease: An Explorative Study.Scandinavian journal of caring sciences · 2026Article
- Cultural and systemic barriers in Parkinson's disease diagnosis, treatment, and research participation among Asian Americans: A qualitative study.Journal of Parkinson's disease · 2026Article
- Should old acquaintance be forgot: A call for recognition and inclusion of advanced Parkinson's disease patients & care partners in evolving research models.Parkinsonism & related disorders · 2025Article
- Parkinson's Disease Caregiving, Level of Care Burden, Caregiving-Related Strain, and Caregiver Health.Healthcare (Basel, Switzerland) · 2025Article
- Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers.Progress in community health partnerships : research, education, and action · 2025Article
- The Feasibility and Efficacy of a Virtual Reality Tandem Cycling Program for Persons with Parkinson's Disease and Their Care Partners.Neurology and therapy · 2024Article
- Caregiver Burden in Parkinson Disease: A Scoping Review of the Literature from 2017-2022.Journal of geriatric psychiatry and neurology · 2024Article
- The Impact of the COVID-19 Pandemic on Care Partners of People with Parkinson's Disease.Movement disorders clinical practice · 2023Article
- Aggression Towards Caregivers in Parkinson's Disease and Related Disorders: A Mixed Methods Study.Movement disorders clinical practice · 2022Article
- Peer Mentoring Program for Informal Caregivers of Homebound Individuals With Advanced Parkinson Disease (Share the Care): Protocol for a Single-Center, Crossover Pilot Study.JMIR research protocols · 2022Article
- Caregiver Burden in Partners of Parkinsonian Patients with Deep Brain Stimulation.Brain sciences · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCare partners support people with Parkinson's disease through a long journey ranging from independence to dependence for many daily tasks. Longitudinal studies are important to understand the evolution of this process and predictors of future needs of care partners.
methodsA scoping review was conducted, searching PubMed for longitudinal studies examining care partner burden, needs or coping in Parkinson's disease published through May 2020.
resultsEight observational studies and 19 interventional studies met the eligibility criteria. Longitudinal observation ranged from 7 weeks to 10 years, involving between six and 8515 care partners. All studies addressed care partner burden, while two and three studies respectively addressed needs and coping. Only one study related burden to specific stages or duration of disease. Results from identified studies show that care partners in Parkinson's disease are at risk for increasing burden over time. Multiple predictors of future burden have been identified related to the person with Parkinson's disease, the care partner, or an intervention. No studies examined the evolution of needs and coping in caregiving in Parkinson's disease.
conclusionThe scarcity of longer term, observational research on the temporal evolution of burden and particularly needs and coping in caregiving for someone with PD is a main identified gap. Even within these observational studies, the impact of caregiving is not often reported. Longitudinal studies on these topics are needed to help understand their change over time and relation to each other, which can inform support planning for care partners.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.