ArticleItalian journal of pediatrics2021
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needs.
Article in Italian journal of pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed, 22 citations in OpenAlex.
- Increasing complexity in children with life-limiting conditions in England: an analysis of national routine data.Archives of disease in childhood · 2026Article
- Evaluation of discharge to palliative care following critical care: a pediatric intensive care perspective.European journal of pediatrics · 2026Article
- How many children have palliative care needs and which of them are less likely to be actively seen by services? A cross-sectional analysis of survey data.BMJ paediatrics open · 2026Article
- Translation and multi-site validation of the 'Pediatric Complex Care Needs Assessment Scale' (ACCAPED) from Italian to English.BMC palliative care · 2026Article
- Needs, status and future directions in palliative care for children with cancer: an insight into the Italian situation.Frontiers in oncology · 2025Review
- Defining and quantifying population-level need for children's palliative care: findings from a rapid scoping review.BMC palliative care · 2024Article
- Paediatric oncologists' perspectives on Strategic solutions to develop Integrated Cancer Palliative Care: feedback intervention theory as an explanatory Framework.BMC palliative care · 2024Article
- Prevalence and determinants of hip pain in non-ambulatory cerebral palsy children: a retrospective cohort study.European journal of physical and rehabilitation medicine · 2023Article
- New insights in pediatrics in 2021: choices in allergy and immunology, critical care, endocrinology, gastroenterology, genetics, haematology, infectious diseases, neonatology, neurology, nutrition, palliative care, respiratory tract illnesses and telemedicine.Italian journal of pediatrics · 2022Review
- A Novel Hospital-to-Home System for Children With Medical Complexities: Usability Testing Study.JMIR formative research · 2022Article
- Evaluation of an Electronic Medical Record Module for Nursing Documentation in Paediatric Palliative Care: Involvement of Nurses with a Think-Aloud Approach.International journal of environmental research and public health · 2022Observational
- The First Step to Initiate Pediatric Palliative Care: Identify Patient Needs and Cooperation of Medical Staff.Healthcare (Basel, Switzerland) · 2022Article
- Participatory Design of a Medication Module in an Electronic Medical Record for Paediatric Palliative Care: A Think-Aloud Approach with Nurses and Physicians.Children (Basel, Switzerland) · 2022Article
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundChildren with medical complexity (CMC) have been defined (Cohen et al., Pediatrics 127: 529-538, 2011.) as an emerging population potentially eligible for PPC. The current study investigated the prevalence of children with medical complexities eligible for a local palliative care network, including a paediatric hospice.
methodsA retrospective cross-sectional survey has been conducted using children clinical charts from 14 local health authorities of our region (Emilia Romagna, Italy).
resultsThe total number of children with life-limiting conditions was 601, with a mean age of 7.4 ± 4.8 years, a prevalence of 8.4/10.000 residents < 19 years of age and a heterogeneous presentation among the provinces in the region. Neurological diseases affect 51% of patients, followed by congenital diseases (21%) and pathologies originating in the perinatal period (6%), while only 4% of the patients had a cancer diagnosis. Patients are dependent from many devices and supports: 32% had a gastrostomy, 22% a respiratory support and 15% of patients had both of them.
conclusionsObserved regional prevalence of complex needs is lower than that published from other European countries. More research is needed to raise awareness of palliative care for children with medical complexities in order to address specific needs.
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