Evidence map›Paper›PMID 33975772›Full record

Trial reportPatient education and counseling2022

Engaging patients in population-based chronic disease management: A qualitative study of barriers and intervention opportunities.

Anya Fang, Dana Abdelgadir, Anjali Gopalan, Thekla Ross, Connie S Uratsu, Stacy A Sterling, Richard W Grant, Esti Iturralde

Abstract readClinical Trial
In one paragraph

Trial report in Patient education and counseling, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Trial
  2. Complexity and Barriers to Vision Care: A Narrative Review Informed by a Mobile Eye Program.International journal of environmental research and public health · 2025
    Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Anya FangDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.
Dana AbdelgadirDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.
Anjali GopalanDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.
Thekla RossDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.
Connie S UratsuDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.
Stacy A SterlingDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.
Richard W GrantDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA. Electronic address: Richard.W.Grant@kp.org.
Esti IturraldeDivision of Research, Kaiser Permanente Northern California, 2000 Broadway, Oakland, CA 94612, USA.

Funding

Multi-Component Behavioral Intervention for Complex Patients with CVD RiskR01HL117939 · NHLBI · KAISER FOUNDATION RESEARCH INSTITUTE · PI GRANT, RICHARD W · 2014 to 2018
$3.4M
Mentored Research to Improve Care for Complex Patients with DiabetesK24DK109114 · NIDDK · KAISER FOUNDATION RESEARCH INSTITUTE · PI GRANT, RICHARD W · 2016 to 2020
$914k
NHLBI NIH HHS R01 HL117939NIDDK NIH HHS K24 DK109114
6 · The paper itself

Abstract

objectiveCardiovascular disease (CVD) continues to be a leading cause of morbidity in the U.S. Managing CVD risk factors, such as diabetes or hypertension, can be challenging for many individuals. We investigated the barriers experienced by patients who persistently struggled to reach their CVD risk factor control goals.

methodsThis qualitative study examined patient, clinician, and researcher observations of individuals' experiences in a chronic disease management program. All participants (n = 332) were enrolled in a clinical trial testing a skills-based group intervention seeking to improve healthcare engagement. Data were analyzed through a general inductive approach and resulting themes were structured along the Capability-Opportunity-Motivation-Behavior framework.

resultsAnalyses identified care engagement barriers related to participants' communication skills and activation, care team relationship processes, and emotional factors. Although most participants reported benefitting from skills training, persistent barriers included distrust of their providers, shame about health challenges, and dissatisfaction with care team interactions that were described as impersonal or unresponsive. CONCLUSIONS AND PRACTICE IMPLICATIONS: Efforts to support engagement in CVD risk factor management programs should address whether patients and their care team have the necessary skills, opportunities and confidence to proactively communicate health needs and engage in non-judgmental interactions for goal-setting, rapport-building, and shared decision-making.

Indexed as

Cardiovascular DiseasesMotivationDelivery of Health CareHumansQualitative ResearchCardiovascular diseaseDiabetesHypertensionMotivationPatient activationPatient educationPatient participation in healthcarePatient-provider communication

Identifiers

PMID33975772
PMCPMC8566319

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.