ArticleHealth expectations : an international journal of public participation in health care and health policy2021
Patient and public involvement in care home research: Reflections on the how and why of involving patient and public involvement partners in qualitative data analysis and interpretation.
Article in Health expectations : an international journal of public participation in health care and health policy, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
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Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Evaluating Process and Outcomes of Public Involvement in Applied Health and Social Care Research: A Rapid Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Involving patient partners as appraisers of shared decision making: an explanatory sequential mixed-methods study.Research involvement and engagement · 2026Article
- Perception of physiotherapy researchers about patient and public involvement in health research design and planning in Nigeria.BMC health services research · 2026Article
- Migrants Living in the United Kingdom and Their Perceptions of Participation in Health Research: A Mixed-Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- Technology-enabled CONTACT tracing in care homes in the COVID-19 pandemic: the CONTACT non-randomised mixed-methods feasibility study.Health technology assessment (Winchester, England) · 2025Article
- Public Involvement to Enhance Care Home Research; Collaboration on a Minimum Data Set for Care Homes.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Reflecting on the Spectrum of Involvement: How do we involve patients as partners in education?Medical education · 2025Article
- Activity provider-facilitated patient and public involvement with care home residents.Research involvement and engagement · 2024Article
- Roles, outcomes, and enablers within research partnerships: A rapid review of the literature on patient and public involvement and engagement in health research.Research involvement and engagement · 2023Review
- Effective approaches to public involvement in care home research: a systematic review and narrative synthesis.Research involvement and engagement · 2023Article
- Context and priorities for health systems strengthening for pain and disability in low- and middle-income countries: a secondary qualitative study and content analysis of health policies.Health policy and planning · 2023Article
- My child is growing and now? Exploring the environmental needs of children with congenital Zika syndrome according to their caregivers' perceptions.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Impact of patient and public (PPI) involvement in the Life After Prostate Cancer Diagnosis (LAPCD) study: a mixed-methods study.BMJ open · 2022Article
- Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences.Research involvement and engagement · 2022Article
- Patient and public involvement in care home research: Reflections on the how and why of involving patient and public involvement partners in qualitative data analysis and interpretation.Health expectations : an international journal of public participation in health care and health policy · 2021Article
- "We Have a Ways to Go, but I Think You've Taken the Steps to Get Us There": Engaging Community Partners in Qualitative Analysis Using the RADaR Technique.International journal of qualitative methodsArticle
Corrections and comments
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Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThere is limited evidence for the impact of involving patients and the public (PPI) in health research. Descriptions of the PPI process are seldom included in publications, particularly data analysis, yet an understanding of processes and impacts of PPI is essential if its contribution to research is to be evaluated.
objectiveTo describe the 'how' of PPI in qualitative data analysis and critically reflect on potential impact.
methodsWe focus on the development and critical reflection of our step-by-step approach to collaborative qualitative data analysis (through a series of analysis workshops) in a specific care home study, and our long-term engagement model with patients and the public (termed PPI partners).
resultsAn open access PPI group, with multiple events over time, sustained broad interest in care home research. Recordings of interview clips, role-play of interview excerpts and written theme summaries were used in workshops to facilitate PPI partner engagement with data analysis in a specific study. PPI resulted in changes to data interpretation and was perceived to make the research process accessible. We reflect on the challenge of judging the benefits of PPI and presenting PPI in research publications for critical commentary.
conclusionsPatient and public involvement partners who are actively engaged with data analysis can positively influence research studies. However, guidance for researchers is needed on approaches to PPI, including appropriate levels and methods for evaluation. Without more systematic approaches, we argue that it is impossible to know whether PPI represents good use of resources and is generating a real impact.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.