ArticleClinical therapeutics2021
Paid Caregivers in the Community-based Dementia Care Team: Do Family Caregivers Benefit?
Article in Clinical therapeutics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 29 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
29 citing papers in PubMed, 39 citations in OpenAlex.
- Visualizing Veterans' Care at Home: Understanding the Structure, Function, and Adequacy of Caregiving Networks.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Awareness and misconceptions of palliative care among paid, unpaid, and non-caregivers in the U.S.BMC palliative care · 2026Article
- Bedbound Status During the Last Year of Life Among Community-Dwelling Older Adults.JAMA network open · 2025Article
- Lived caregiving experience of foreign domestic workers (FDWs) for non-cancer palliative patients in Singapore (a secondary qualitative data analysis).BMC palliative care · 2025Article
- Home-Based Care Outcomes: Does the Care Provider Matter?Health economics · 2025Article
- The dementia care workforce: Essential to care but large research gaps exist.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Review
- Long-Term Care Services and Supports Needed for Successful Aging-in-Place: A Critical Review.Annual review of public health · 2025Review
- Caregiver burden of Alzheimer's disease among informal caregivers: a cross-sectional study in Malaysia.Scientific reports · 2025Article
- Home Care Workers Providing Person-Centered Care to People With Dementia.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2024Article
- Paid Caregiving in Dementia Care Over Time: Paid Caregiver, Family Caregiver, and Geriatrician Perspectives.The Gerontologist · 2024Article
- Experiences of formal caregivers of elderly inpatients with physical disabilities in China: a qualitative study.BMC nursing · 2024Article
- Home Care Worker Continuity in Home-Based Long-Term Care: Associated Factors and Relationships With Client Health and Well-Being.Innovation in aging · 2024Article
- Paid Care for People with Functional Impairment and Serious Illness: Results from the Health and Retirement Study.Journal of general internal medicine · 2023Article
- Current Challenges in the Diagnosis of Progressive Neurocognitive Disorders: A Critical Review of the Literature and Recommendations for Primary and Secondary Care.Brain sciences · 2023Review
- Use of Home-Based Clinical Care and Long-Term Services and Supports Among Homebound Older Adults.Journal of the American Medical Directors Association · 2023Article
- Barriers to Service Use Among Dementia Family Caregivers in Rural Appalachia: Implications for Reducing Caregiver Overload.Prevention science : the official journal of the Society for Prevention Research · 2023Article
- Gatekeepers: The Association of Caregiving Network Characteristics With Emergency Department Use by Persons Living With Dementia.The journals of gerontology. Series B, Psychological sciences and social sciences · 2023Article
- The Role of Dementia and Residential Service Agency Characteristics in the Care Experiences of Maryland Medicaid Home and Community-Based Service Participants and Family and Unpaid Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2023Article
- Associations Between Use of Paid Help and Care Experiences Among Medicare-Medicaid Enrolled Older Adults With and Without Dementia.The journals of gerontology. Series B, Psychological sciences and social sciences · 2022Article
- Incorporating Paid Caregivers Into Medical Education to Enhance Medical Student Exposure to This Essential Workforce.JMIR medical education · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 3 institutions in 1 country.
Funding
Abstract
purposeOlder adults with dementia often rely on both paid caregivers (ie, home health aides, personal care attendants, other direct care workers) and family caregivers (ie, spouses, children, other unpaid individuals) to remain in the community. This study conceptualizes paid caregivers as part of the collaborative dementia care team and examines the association between receipt of paid care and primary family caregiver experience.
methodsUsing data from 3 waves (2011, 2015, and 2017) of the National Health and Aging Trends Study linked to the National Study of Caregiving, community-dwelling Medicare beneficiaries aged ≥67 years with advanced dementia (n = 338 observations) were identified. Primary family caregiver experiences were compared among those with zero, part-time (<40 hours/week), and full-time (≥40 hours/week) paid care, and multivariable models were used to evaluate the associations between full-time paid care and family caregiver strain (eg, being overwhelmed due to caregiving) and activity restriction (eg, being unable to work for pay due to caregiving).
findingsAbout one half of the community-dwelling older adults with advanced dementia received paid care: 30% had part-time paid care and 18% had full-time paid care. The experiences of family caregivers of those receiving part-time and no paid care were not significantly different. After adjusting for family caregiver and care recipient characteristics, receipt of full-time paid care was associated with a nearly 70% reduced odds of having activity restrictions due to caregiving (odds ratio, 0.31; P = 0.01) and a reduction in mean caregiver strain score (-0.73; P = 0.04). There was no statistically significantly association between the odds of high caregiver strain (score ≥5) and receipt of paid care (odds ratio, 0.65; P = 0.33). IMPLICATIONS: The provision of paid care for individuals with dementia in the community may benefit family caregivers. Future work should acknowledge the important ways that paid caregivers contribute to outcomes for all members of the collaborative dementia care team.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.