Evidence map›Paper›PMID 33971872›Full record

ArticleBMC medical ethics2021

Taking stock of the availability and functions of National Ethics Committees worldwide.

Patrik Hummel, Taghreed Adam, Andreas Reis, Katherine Littler

Abstract read
In one paragraph

Article in BMC medical ethics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
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  4. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Patrik HummelChair of Systematic Theology II (Ethics), Friedrich-Alexander-Universität Erlangen-Nürnberg, Kochstraße 6, 91054, Erlangen, Germany. patrik.hummel@fau.de.ORCID 0000-0001-9668-0810
Taghreed AdamEmerging Technologies, Research Prioritisation and Support Unit, Research for Health Department, World Health Organization, 20, Avenue Appia, 1211, Geneva 27, Switzerland.
Andreas ReisHealth Ethics and Governance Unit, Research for Health Department, World Health Organization, 20, Avenue Appia, 1211, Geneva 27, Switzerland.
Katherine LittlerHealth Ethics and Governance Unit, Research for Health Department, World Health Organization, 20, Avenue Appia, 1211, Geneva 27, Switzerland.

Funding

World Health Organization 001
6 · The paper itself

Abstract

backgroundNational Ethics Committees (NECs) offer important oversight and guidance functions and facilitate public debate on bioethical issues. In an increasingly globalized world where technological advances, multi-national research collaborations, and pandemics are creating ethical dilemmas that transcend national borders, coordination and the joining of efforts among NECs are key. The purpose of this study is to take stock of the current NEC landscape, their varying roles and missions, and the range of bioethical topics on which they deliberated since their inception.

methodsData on the availability, functions, and ethical deliberations (publications) of NECs globally were gathered through a systematic search of NEC websites and through contacts known to the authors. The search was conducted in English, French, and Spanish. The data abstraction was done in Excel and included the NEC's country, region, functions, and deliberations on bioethical issues. Deliberation topics were classified into thematic categories through an iterative process of regrouping to arrive at the main set of themes.

results124 NECs in 100 countries were identified. 44% of the NECs are in Europe and 47% are in high-income countries. Out of the 1108 retrieved publications, 40% were on bioethics in the context of research, followed by the clinic (28%) and public health issues (22%). The top five topics of these publications were: research ethics (124; 9%), genetics and genomics (62; 6%), organ transplantation (58; 5%), assisted reproductive technology (49; 4%), and end of life (36; 3%).

conclusionOur study makes an important contribution to understanding the current interests and functions of NECs and the range of their bioethics deliberations. By making the data publicly available through this publication, it allows users to conduct tailored analyses and queries based on their interests, and to seek and strengthen collaboration and exchange. It also makes the case for the fruitfulness of developing and maintaining a global repository of current and new deliberations to more effectively advance this field for the greater good of humanity, research, and public health.

Indexed as

BioethicsEthics CommitteesBioethical IssuesEthics, ResearchEuropeHumansInfant, NewbornDeliberationGlobal bioethicsHealth policyMedical ethicsNational Ethics CommitteesPublic health ethicsResearch ethics

Identifiers

PMID33971872
PMCPMC8108348

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.