Evidence map›Paper›PMID 33962964›Full record

GuidelineAnnals of the rheumatic diseases2021

2021 EULAR recommendations for the implementation of self-management strategies in patients with inflammatory arthritis.

Elena Nikiphorou, Eduardo José Ferreira Santos, Andrea Marques, Peter Böhm, Johannes Wj Bijlsma, Claire Immediato Daien, Bente Appel Esbensen, Ricardo J O Ferreira, George E Fragoulis, Pat Holmes and 8 more

Registry-linked trialOpen access · hybridAbstract readPractice Guideline
In one paragraph

Guideline in Annals of the rheumatic diseases, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06308770 (Fatigue in Lupus Intervention Programmes), which is not on this map. Cited by 169 papers, 9 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
169citing papers in PubMed, 9 pooled it
36.6field-weighted citation impact, top 1% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06308770 narecruitingnot on this mapstarted 2024, after this paper: background citation

Fatigue in Lupus Intervention Programmes (FLIP): A Randomised Controlled Trial Investigating the Effectiveness of Fatigue Management in Systemic Lupus Erythematosus

TypeinterventionalSponsorUniversity of EdinburghRan2024 to 2027Enrolled90ConditionsSystemic Lupus ErythematosusArmsStandard Care, 4 week FMP, 7 week FMP
3 · Its place in the literature

Who cites it

169 citing papers in PubMed, 9 syntheses or guidelines pooled it, 291 citations in OpenAlex.

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109 more citing papers are in PubMed but not listed here.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors at 13 institutions in 12 countries.

Elena NikiphorouRheumatology Department, King's College Hospital, London, UK enikiphorou@gmail.com.ORCID 0000-0001-6847-3726
Eduardo José Ferreira Santos *Rheumatology, Centro Hospitalar e Universitário de Coimbra EPE, Coimbra, Portugal.ORCID 0000-0003-0557-2377
Andrea Marques *Rheumatology, Centro Hospitalar e Universitário de Coimbra EPE, Coimbra, Portugal.ORCID 0000-0002-2026-9926
Peter BöhmGerman League against Rheumatism, Bonn, Germany.ORCID 0000-0002-7186-1997
Johannes Wj BijlsmaDepartment of Rheumatology & Clinical Immunology, University Medical Center Utrecht, Utrecht, The Netherlands.ORCID 0000-0002-0128-8451
Claire Immediato DaienLapeyronie Hospital, CHU Montpellier, and Inserm U1046, CNRS UMR 9214, Montpellier University, Montpellier, France.
Bente Appel EsbensenCopenhagen Center for Arthritis Research (COPECARE), Center for Rheumatology and Spine Diseases, Centre of Head and Orthopaedics, Rigshospitalet, Denmark.ORCID 0000-0001-5331-8221
Ricardo J O FerreiraRheumatology, Centro Hospitalar e Universitário de Coimbra EPE, Coimbra, Portugal.ORCID 0000-0002-2517-0247
George E FragoulisFirst Department of Internal Medicine, Propaedeutic Clinic, Athens, Greece.ORCID 0000-0003-4932-7023
Pat HolmesNational Rheumatoid Arthritis Society, Maidenhead, UK.
Hayley McBainSchool of Health Sciences, City, University of London, London, UK.ORCID 0000-0002-6742-1104
George S MetsiosFaculty of Education, Health and Wellbeing, University of Wolverhampton, Walsall, UK.
Rikke Helene MoeDivision of Rheumatology and Research, Diakonhjemmet Hospital, Oslo, Norway.ORCID 0000-0001-7601-5346
Tanja A StammSection for Outcomes Research, Center for Medical Statistics, Informatics, and Intelligent Systems, Medical University of Vienna, Vienna, Austria.ORCID 0000-0003-3073-7284
Annette de ThurahDepartment of Rheumatology, Aarhus University Hospital, Aarhus, Denmark.ORCID 0000-0003-0103-4328
Condruta ZabalanRomanian League against Rheumatism, Bucharest, Romania.
Loreto CarmonaInstituto de Salud Musculoesquelética, Madrid, Spain.ORCID 0000-0002-4401-2551
Ailsa BosworthNational Rheumatoid Arthritis Society, Littlewick Green, UK.
Center for Rheumatology · USArthritis Society · CAEscola Superior de Enfermagem de Coimbra · PTEuropean League Against Rheumatism · CHAarhus University Hospital · DKAthens Medical Center · GRCity, University of London · GBInserm · FRInstituto de Salud Musculoesquelética · ESMedical University of Vienna · ATRigshospitalet · DKUniversity Medical Center Utrecht · NLUniversity of Thessaly · GR

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundAn important but often insufficient aspect of care in people with inflammatory arthritis (IA) is empowering patients to acquire a good understanding of their disease and building their ability to deal effectively with the practical, physical and psychological impacts of it. Self-management skills can be helpful in this regard.

objectivesTo develop recommendations for the implementation of self-management strategies in IA.

methodsA multidisciplinary taskforce of 18 members from 11 European countries was convened. A systematic review and other supportive information (survey of healthcare professionals (HCPs) and patient organisations) were used to formulate the recommendations.

resultsThree overarching principles and nine recommendations were formulated. These focused on empowering patients to become active partners of the team and to take a more proactive role. The importance of patient education and key self-management interventions such as problem solving, goal setting and cognitive behavioural therapy were highlighted. Role of patient organisations and HCPs in promoting and signposting patients to available resources has been highlighted through the promotion of physical activity, lifestyle advice, support with mental health aspects and ability to remain at work. Digital healthcare is essential in supporting and optimising self-management and the HCPs need to be aware of available resources to signpost patients.

conclusionThese recommendations support the inclusion of self-management advice and resources in the routine management of people with IA and aim to empower and support patients and encourage a more holistic, patient-centred approach to care which could result in improved patient experience of care and outcomes.

Indexed as

Self-ManagementArthritis, PsoriaticArthritis, RheumatoidCognitive Behavioral TherapyComorbidityEuropeExerciseHumansPatient Education as TopicPatient ParticipationRheumatologyRisk Reduction BehaviorSelf EfficacySocieties, MedicalSpondylarthropathiesankylosingarthritishealth careoutcome assessmentpsoriaticrheumatoidspondylitis

Identifiers

PMID33962964
PMCPMC8458093
OpenAlexW3157537176

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.