Evidence map›Paper›PMID 33959702›Full record

ArticleAAS open research2021

Community engagement and feedback of results in the H3Africa AWI-Gen project: Experiences from the Navrongo Demographic and Health Surveillance site in Northern Ghana.

Godfred Agongo, Cornelius Debpuur, Lucas Amenga-Etego, Engelbert A Nonterah, Michael B Kaburise, Abraham Oduro, Michele Ramsay, Paulina Tindana

Abstract read
In one paragraph

Article in AAS open research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Godfred AgongoNavrongo Health Research Centre, Navrongo, Ghana.
Cornelius DebpuurNavrongo Health Research Centre, Navrongo, Ghana.
Lucas Amenga-EtegoWest African Centre for Cell Biology and Infectious Pathogens, Department of Biochemistry, University of Ghana, Accra, Ghana.
Engelbert A NonterahNavrongo Health Research Centre, Navrongo, Ghana.ORCID https://orcid.org/0000-0001-8491-6478
Michael B KaburiseNavrongo Health Research Centre, Navrongo, Ghana.
Abraham OduroNavrongo Health Research Centre, Navrongo, Ghana.
Michele RamsaySydney Brenner Institute for Molecular Bioscience, Faculty of Health Sciences, University of Witswatersrand, Johannesburg, South Africa.ORCID https://orcid.org/0000-0002-4156-4801
Paulina TindanaHealth Policy, Plannng and Management, School of Public Health, College of Health Sciences, University of Ghana, Legon/Accra, Ghana.

Funding

Shared Core: Biobanking, Bioinformatics and Data ManagementU54HG006938 · NHGRI · WITS HEALTH CONSORTIUM (PTY), LTD · PI RAMSAY, MICHELE MICHELE · 2012 to 2022
$12.2M
NHGRI NIH HHS U54 HG006938
6 · The paper itself

Abstract

Community and Public engagement (CE) have gained traction as an ethical best practice for the conduct of genomics research, particularly in the context of Africa. In the past 10 years, there has been growing scholarship on the value and practice of engaging key stakeholders including communities involved in genomics research. However, not much has been documented on how research teams, particularly in international collaborative research projects, are navigating the complex process of engagement including the return of key research findings. This paper is part of a series of papers describing the CE processes used in the AWI-Gen study sites. We describe the key processes of engagement, challenges encountered and the major lessons learned. We pay particular attention to the experiences in returning research results to participants and communities within the Demographic and Health Surveillance site in northern Ghana.

Indexed as

Community engagementfeedback of resultsgenomicsGhana

Identifiers

PMID33959702
PMCPMC8063542

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.