Trial reportPediatrics2021
Pediatric Advance Care Planning and Families' Positive Caregiving Appraisals: An RCT.
Trial report in Pediatrics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02693665 (Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer), which is not on this map. Cited by 22 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Building Evidence for Effective Palliative/End of Life Care for Teens With Cancer
Who cites it
22 citing papers in PubMed, 3 syntheses or guidelines pooled it, 39 citations in OpenAlex.
- Current status of and factors influencing advance care planning participation among adolescents and young adults with cancer: a mixed-methods systematic review.BMC palliative care · 2026Pooled it
- Parental experiences in pediatric advance care planning for children with life-limiting illnesses: a qualitative meta-synthesis.BMC palliative care · 2026Pooled it
- Case Management for Enhancing Wellbeing, Resilience, and Quality of Life in Caregivers of Children and Adolescents With Chronic Illnesses and Disabilities: A Systematic Review and Meta-Analysis.Nursing & health sciences · 2025Pooled it
- Pediatric Advance Care Planning and Adolescent Preparedness and Quality of Life: An RCT.Pediatrics · 2025Trial
- Advance Care Planning for Children With Rare Diseases: A Pilot RCT.Pediatrics · 2024Trial
- An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial.Pediatrics · 2022Trial
- Parental Goals of Care for Children With Rare Diseases: A Content Analysis of Pediatric Advance Care Planning Conversations.The American journal of hospice & palliative care · 2026Article
- Caregiving Appraisal and Social Support: Key Determinants of Quality of Life Among Caregivers of Individuals with Alcohol Use Disorder.Annals of neurosciences · 2026Article
- "The American journal of hospice & palliative care · 2025Article
- "You Can Rest Knowing That We Know What You Want"-Longitudinal Advance Care Planning Discussions With Young Adults Receiving Hematopoietic Stem Cell Transplantation.Psycho-oncology · 2025Article
- Advance Care Planning Conversations in Pediatric Patients with Refractory Oncologic Disease.Children (Basel, Switzerland) · 2025Review
- Les objectifs des échanges sur les soins et de la planification préalable des soins chez les patients d'âge pédiatrique atteints d'une maladie grave.Paediatrics & child health · 2024Review
- Goals of care conversations and advance care planning for paediatric patients living with serious illness.Paediatrics & child health · 2024Review
- Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning.JAMA network open · 2024Article
- The impact of specialized pediatric palliative care on advance care planning and healthcare utilization in children and young adults: a retrospective analysis of medical records of in-hospital deaths.BMC palliative care · 2024Article
- Children with cancer at the end of life in a middle-income country: integrated pediatric palliative care improves outcomes.BMC palliative care · 2024Observational
- Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents: a collective case study.European journal of pediatrics · 2023Article
- Pediatric Advance Care Planning: A Scoping Review.Children (Basel, Switzerland) · 2023Article
- Advance Care Planning in Serious Illness: A Narrative Review.Journal of pain and symptom management · 2023Review
- Mapping the Landscape of Advance Care Planning in Adolescents and Young Adults Receiving Allogeneic Hematopoietic Stem Cell Transplantation: A 5-Year Retrospective Review.Transplantation and cellular therapy · 2022Article
Corrections and comments
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Authors and funding
8 authors at 7 institutions in 2 countries.
Funding
Abstract
BACKGROUND AND
objectivesLittle is known about how families respond to pediatric advance care planning. Physicians are concerned that initiating pediatric advance care planning conversations with families is too distressing for families. We examined the effect of family centered pediatric advance care planning intervention for teens with cancer (FACE-TC) advance care planning on families' appraisals of their caregiving, distress, and strain.
methodsIn a randomized clinical trial with adolescents with cancer and their families conducted from July 2016 to April 2019 in 4 tertiary pediatric hospitals, adolescents and family dyads were randomly assigned at a 2:1 intervention/control ratio to either the 3 weekly sessions of FACE-TC (Advance Care Planning Survey; Next Steps: Respecting Choices; Five Wishes) or treatment-as-usual. Only the family member was included in this study. Generalized estimating equations assessed the intervention effect measured by Family Appraisal of Caregiving Questionnaire.
resultsFamilies' (
conclusionsFamilies benefited from participation in FACE-TC, which resulted in positive appraisals of their caregiving for their child with cancer, while not significantly burdening them with distress or strain. Clinicians can be assured of the tolerability of this family-supported model.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.