ArticleEuropean journal of human genetics : EJHG2021
International transfers of personal data for health research following Schrems II: a problem in need of a solution.
Article in European journal of human genetics : EJHG, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- BRIDGE pilot study: a bilateral regulatory investigation of data governance and exchange.NPJ digital medicine · 2026Article
- Data visiting governance: a conceptual framework.Human genomics · 2025Review
- Streamlining Ophthalmic Documentation With Anonymized, Fine-Tuned Language Models: Feasibility Study.Interactive journal of medical research · 2025Article
- Communicating clearly about data sharing in genomics.Human genomics · 2025Review
- Cross-jurisdictional Data Transfer in Health Research: Stakeholder Perceptions on the Role of Law.Asian bioethics review · 2024Article
- EU-US data transfers: an enduring challenge for health research collaborations.NPJ digital medicine · 2024Review
- Clarifying the legal requirement for cross-border sharing of health data in POPIA: Recommendations on theSouth African journal of bioethics and law · 2024Article
- DeepFake knee osteoarthritis X-rays from generative adversarial neural networks deceive medical experts and offer augmentation potential to automatic classification.Scientific reports · 2022Article
- Routine omics collection is a golden opportunity for European human research in space and analog environments.Patterns (New York, N.Y.) · 2022Review
- International data governance for neuroscience.Neuron · 2022Review
- DeepFake electrocardiograms using generative adversarial networks are the beginning of the end for privacy issues in medicine.Scientific reports · 2021Article
- Fond farewell to clinical utility gene cards.European journal of human genetics : EJHG · 2021Article
- Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group.Wellcome open research · 2020Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
On 16 July 2020, the Court of Justice of the European Union issued their decision in the Schrems II case concerning Facebook's transfers of personal data from the EU to the US. The decision may have significant effects on the legitimate transfer of personal data for health research purposes from the EU. This article aims: (i) to outline the consequences of the Schrems II decision for the sharing of personal data for health research between the EU and third countries, particularly in the context of the COVID-19 pandemic; and, (ii) to consider certain options available to address the consequences of the decision and to facilitate international data exchange for health research moving forward.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.