ArticleAmerican heart journal2021
Individuals aged 1-64 years with documented congenital heart defects at healthcare encounters, five U.S. surveillance sites, 2011-2013.
Article in American heart journal, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Characteristics of children with congenital heart defects and their caregivers in three U.S. sites: the Congenital Heart Survey To Recognize Outcomes Needs and well-beinG of KIDS (CHSTRONG KIDS).Progress in pediatric cardiology · 2026Article
- Comorbidities in Adolescents With Congenital Heart Disease: A Population-based Study.Pediatrics open science · 2025Article
- Prevalence of congenital heart defects among children with and without diagnosed fetal alcohol spectrum disorders, 2016-2022.Drug and alcohol dependence · 2025Article
- Comorbidity and Multimorbidity in Adults With Congenital Heart Disease: Findings From a Multi-Site Population-Based Study.Birth defects research · 2025Article
- Comorbidities and Healthcare Utilization Among Young Adults With Congenital Heart Defects by Down Syndrome Status-Congenital Heart Survey to Recognize Outcomes, Needs, and wellbeinG, 2016-2019.Birth defects research · 2025Article
- A Generalized Machine Learning Model for Identifying Congenital Heart Defects (CHDs) Using ICD Codes.Birth defects research · 2025Article
- Cardiovascular disease risk factors in congenital heart disease survivors are associated with heart failure.Pediatric research · 2025Article
- Longitudinal assessment of health-related quality of life in patients with adult congenital heart disease undergoing cardiac surgery.JTCVS open · 2024Article
- Enhancing the Classification of Congenital Heart Defects for Outcome Association Studies in Birth Defects Registries.Birth defects research · 2024Article
- Racial and Ethnic Disparities in Health Care Usage and Death by Neighborhood Poverty Among Individuals With Congenital Heart Defects, 4 US Surveillance Sites, 2011 to 2013.Journal of the American Heart Association · 2024Article
- Risk Factors and Outcomes Associated with Gaps in Care in Children with Congenital Heart Disease.Pediatric cardiology · 2024Article
- Health Care Usage Among Adolescents With Congenital Heart Defects at 5 Sites in the United States, 2011 to 2013.Journal of the American Heart Association · 2022Article
- How Well DoJournal of the American Heart Association · 2022Article
- Early-onset dementia among privately-insured adults with and without congenital heart defects in the United States, 2015-2017.International journal of cardiology · 2022Article
- Post-traumatic stress disorder, anxiety, and depression among adults with congenital heart defects.Birth defects research · 2022Article
- Prevention and awareness of birth defects across the lifespan using examples from congenital heart defects and spina bifida.Birth defects research · 2022Article
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Authors and funding
14 authors.
Funding
Abstract
backgroundMany individuals born with congenital heart defects (CHD) survive to adulthood. However, population estimates of CHD beyond early childhood are limited in the U.S.
objectivesTo estimate the percentage of individuals aged 1-to-64 years at five U.S. sites with CHD documented at a healthcare encounter during a three-year period and describe their characteristics.
methodsSites conducted population-based surveillance of CHD among 1 to 10-year-olds (three sites) and 11 to 64-year-olds (all five sites) by linking healthcare data. Eligible cases resided in the population catchment areas and had one or more healthcare encounters during the surveillance period (January 1, 2011-December 31, 2013) with a CHD-related ICD-9-CM code. Site-specific population census estimates from the same age groups and time period were used to assess percentage of individuals in the catchment area with a CHD-related ICD-9-CM code documented at a healthcare encounter (hereafter referred to as CHD cases). Severe and non-severe CHD were based on an established mutually exclusive anatomic hierarchy.
resultsAmong 42,646 CHD cases, 23.7% had severe CHD and 51.5% were male. Percentage of CHD cases among 1 to 10-year-olds, was 6.36/1,000 (range: 4.33-9.96/1,000) but varied by CHD severity [severe: 1.56/1,000 (range: 1.04-2.64/1,000); non-severe: 4.80/1,000 (range: 3.28-7.32/1,000)]. Percentage of cases across all sites in 11 to 64-year-olds was 1.47/1,000 (range: 1.02-2.18/1,000) and varied by CHD severity [severe: 0.34/1,000 (range: 0.26-0.49/1,000); non-severe: 1.13/1,000 (range: 0.76-1.69/1,000)]. Percentage of CHD cases decreased with age until 20 to 44 years and, for non-severe CHD only, increased slightly for ages 45 to 64 years.
conclusionCHD cases varied by site, CHD severity, and age. These findings will inform planning for the needs of this growing population.
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