Evidence map›Paper›PMID 33939076›Full record

ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2021

The effect of functioning on Quality of Life Inventory-Disability measured quality of life is not mediated or moderated by parental psychological distress.

A J O Whitehouse, P Jacoby, D Reddihough, H Leonard, K Williams, Jenny Downs

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In one paragraph

Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.9field-weighted citation impact, top 24% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 7 citations in OpenAlex.

  1. Observational
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

A J O WhitehouseTelethon Kids Institute, The University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia.
P JacobyTelethon Kids Institute, The University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia.
D ReddihoughNeurodisability and Rehabilitation, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
H LeonardTelethon Kids Institute, The University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia.
K WilliamsPaediatric Education and Research, Monash University, Melbourne, Victoria, Australia.
Jenny DownsTelethon Kids Institute, The University of Western Australia, PO Box 855, Perth, Western Australia, 6872, Australia. Jenny.Downs@telethonkids.org.au.ORCID http://orcid.org/0000-0001-7358-9037
The Kids Research Institute Australia · AUMonash University · AURoyal Children's Hospital · AU

Funding

National Health and Medical Research Council 1103745
6 · The paper itself

Abstract

purposeThe measurement of quality of life (QOL) in children with intellectual disability often relies upon proxy report via caregivers. The current study investigated whether caregiver psychological distress mediates or moderates the effects of impairment on their ratings of QOL in children with intellectual disability.

methodsCaregivers of 447 children with an intellectual disability reported their child's day-to-day functioning, their own psychological distress using the Kessler Psychological Distress Scale, and the Quality of Life Inventory-Disability (QI-Disability), a measure of QOL for proxy report of a child's observable behaviours that indicate quality of life. Linear regression was used to assess the effects of the child's functional abilities on their QI-Disability score and causal mediation analysis to estimate the extent to which these effects were mediated by caregivers' psychological distress.

resultsA minority of caregivers (n = 121, 27.1%) reported no psychological distress. Lower day-to-day functional abilities, such as being fully dependent on others to manage their personal needs were associated with lower total QOL scores. There was no significant mediation effect of caregiver psychological distress on the association between child functioning and total QOL scores. Moderation analyses revealed small and largely nonsignificant interaction coefficients, indicating that caregiver psychological distress did not influence the strength of the relationship between child functioning and total QOL scores.

conclusionCaregiver psychological distress did not mediate or moderate the relationship between the level of functional abilities and QOL in children with intellectual disability. QI-Disability measured observable child behaviours which may reduce the influence of caregiver factors on the accurate measure of QOL for children with intellectual disability.

Indexed as

Psychological DistressQuality of LifeActivities of Daily LivingCaregiversChildHumansParentsSurveys and QuestionnairesCaregiver mental healthFunctional impairmentIntellectual disabilityProxy reportQuality of life

Identifiers

PMID33939076
OpenAlexW3157933552

What OpenQuestion holds

Textmetadata
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.