SynthesisAMIA ... Annual Symposium proceedings. AMIA Symposium2020
What Do Patients and Caregivers Want? A Systematic Review of User Suggestions to Improve Patient Portals.
Synthesis in AMIA ... Annual Symposium proceedings. AMIA Symposium, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
13 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Women's experiences of using patient portals in healthcare settings: a rapid review.BMC women's health · 2024Pooled it
- A scoping review of studies on secure messaging through patient portals: persistent challenges and potential solutions.npj health systems · 2026Article
- Advice for Improving the Experience of Web-Based Patient Portals: Qualitative Interviews With Caregiver-Adolescent Dyads.JMIR pediatrics and parenting · 2025Article
- Digital transformation with clinical alerts and personalized care systems in an integrated value based model.NPJ digital medicine · 2025Article
- Needs of Patients With Gynecologic Cancer and Their Caregivers for Obtaining mHealth-Supported Self-Management: Focus Group Study.JMIR cancer · 2024Article
- Article
- A Computationally-guided Qualitative Analysis to Understand User Experiences with Different Types of Mobile Personal Health Records.AMIA ... Annual Symposium proceedings. AMIA Symposium · 2024Article
- When Positive is Negative: Health Literacy Barriers to Patient Access to Clinical Laboratory Test Results.The journal of applied laboratory medicine · 2023Article
- Alerts and Collections for Automating Patients' Sensemaking and Organizing of Their Electronic Health Record Data for Reflection, Planning, and Clinical Visits: Qualitative Research-Through-Design Study.JMIR human factors · 2023Article
- Catalyzing dementia care through the learning health system and consumer health information technology.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2023Article
- New Ways for Patients to Make Sense of Their Electronic Health Record Data Using the Discovery Web Application: Think-Aloud Evaluation Study.JMIR formative research · 2023Article
- Patient Portals to Support Care Partner Engagement in Adolescent and Adult Populations: A Scoping Review.JAMA network open · 2022Article
- Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
Significant investments have been made in patient portals in order to provide patients with greater access to their medical records, as well as to other services such as secure electronic communication with their healthcare provider(s). Unfortunately, overall, patient adoption and use of patient portals has been lower than expected. According to the user-centered design philosophy, including end-user voices in all stages of the design process is critical to a technology's success. Thus, as a part of a larger systematic review, we examined the patient portal literature and identified 42 studies that reported patient's or their caregiver's suggestions to improve patient portals. The results suggest that patients and caregivers want patient portals to (i) support human connection (e.g., virtual patient-provider interactions), (ii) give patients more control (e.g., over their medical record) and be designedfor the variation in patient and caregiver experiences, and (iii) be innovative (e.g., provide contextualized medical advice).
Indexed as
Identifiers
33936483PMC8075519What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.