Evidence map›Paper›PMID 33914750›Full record

SynthesisPloS one2021

Service user experiences of community services for complex emotional needs: A qualitative thematic synthesis.

Luke Sheridan Rains, Athena Echave, Jessica Rees, Hannah Rachel Scott, Billie Lever Taylor, Eva Broeckelmann, Thomas Steare, Phoebe Barnett, Chris Cooper, Tamar Jeynes and 4 more

Open access · goldAbstract readSystematic Review
In one paragraph

Synthesis in PloS one, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 5 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 5 pooled it
7.3field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 5 syntheses or guidelines pooled it, 59 citations in OpenAlex.

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  6. Article
  7. Turning to Service Users for the Understanding of Current and Future Mental Health Services in the Development Process of Research and Practice: A Qualitative Study.Health expectations : an international journal of public participation in health care and health policy · 2026
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  9. Complex mental health difficulties: a mixed-methods study in primary care.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 3 institutions in 1 country.

Luke Sheridan RainsDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, United Kingdom.ORCID 0000-0003-4905-4168
Athena EchaveDivision of Psychiatry, University College London, London, United Kingdom.
Jessica ReesDivision of Psychiatry, University College London, London, United Kingdom.
Hannah Rachel ScottDivision of Psychiatry, University College London, London, United Kingdom.
Billie Lever TaylorDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, United Kingdom.
Eva BroeckelmannHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom.
Thomas SteareDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, United Kingdom.
Phoebe BarnettDepartment of Clinical, Educational and Health Psychology, University College London, London, United Kingdom.ORCID 0000-0001-6521-3101
Chris CooperDepartment of Clinical, Educational and Health Psychology, University College London, London, United Kingdom.
Tamar JeynesHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom.
Jessica RussellHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit Complex Emotional Needs Lived Experience Working Group, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom.
Sian OramHealth Service and Population Research Department, NIHR Mental Health Policy Research Unit, Institute of Psychiatry, Psychology & Neuroscience, King's College London, London, United Kingdom.
Sarah RoweDivision of Psychiatry, University College London, London, United Kingdom.
Sonia JohnsonDivision of Psychiatry, NIHR Mental Health Policy Research Unit, University College London, London, United Kingdom.
University College London · GBKing's College London · GBMental Health Research UK · GB

Funding

Department of Health
6 · The paper itself

Abstract

backgroundThere is a recognised need to develop clear service models and pathways to provide high quality care in the community for people with complex emotional needs, who may have been given a "personality disorder" diagnosis. Services should be informed by the views of people with these experiences.

aimsTo identify and synthesise qualitative studies on service user experiences of community mental health care for Complex Emotional Needs.

methodsWe searched six bibliographic databases for papers published since 2003. We included peer reviewed studies reporting data on service user experiences and views about good care from community-based mental health services for adults with CEN, including generic mental health services and specialist "personality disorder" services. Studies using any qualitative method were included and thematic synthesis used to identify over-arching themes.

resultsForty-seven papers were included. Main themes were: 1) The need for a long-term perspective on treatment journeys; 2) The need for individualised and holistic care; 3) Large variations in accessibility and quality of mental health services; 4) The centrality of therapeutic relationships; 5) Impacts of 'personality disorder' diagnosis. Themes tended to recur across studies from different countries and years. DISCUSSION: Recurrent major themes included wanting support that is individualised and holistic, provides continuity over long journeys towards recovery, and that is delivered by empathetic and well-informed clinicians who are hopeful but realistic about the prospects of treatment. Care that met these simple and clearly stated priorities tended to be restricted to often limited periods of treatment by specialist "personality disorder" services: generic and primary care services were often reported as far from adequate. There is an urgent need to co-design and test strategies for improving long-term support and treatment care for people with "personality disorders" throughout the mental health care system.

Indexed as

Community Mental Health ServicesDisease ManagementEmotionsHealth Services AccessibilityHolistic HealthHumansMental DisordersPersonality DisordersPrecision MedicineQualitative ResearchQuality of Health Care

Identifiers

PMID33914750
PMCPMC8084224
OpenAlexW3157923398

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.