ArticleThe European journal of health economics : HEPAC : health economics in prevention and care2021
What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality-adjusted life years? Application to the development of the EQ-HWB?
Article in The European journal of health economics : HEPAC : health economics in prevention and care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 42 citations in OpenAlex.
- Validation of the EQ-HWB-9 in a mental health sample and an investigation of modifications to items.Health and quality of life outcomes · 2026Trial
- Psychometric evaluation of the Disability Wellbeing Index (DWI) against the Adult Social Care Outcomes Toolkit (ASCOT) among people with disability.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Exploration of visual analogue scale versions with the EQ-HWB-9 to measure health, social care, and carer-related quality of life: a VASt landscape.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Psychometric performance of the experimental EQ-HWB-9 and EQ-5D-5L in the general Chinese population.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Measuring outcomes for loneliness research: examining the appropriateness of the EQ-5D-5 L and EQ-HWB.The European journal of health economics : HEPAC : health economics in prevention and care · 2026Article
- Valuing health and wellbeing using discrete choice experiment: exploring feasibility, design effect and international preference similarity.The European journal of health economics : HEPAC : health economics in prevention and care · 2026Article
- Developing a quality of life framework from the perspective of laypeople: a qualitative comparison with the EQ-HWB framework.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- The psychometric performance of the EQ-HWB-9 for measuring health and wellbeing in a general population sample from Australia and New Zealand.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Article
- Toward a comprehensive research agenda: exploring the health economics of palliative care in Australia.BMC palliative care · 2025Article
- Exploring subjective constructions of quality of life in patients, carers and the healthy general public: a Q-methodological study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Validation of EuroQol instruments in paediatric patients and their caregivers in China: protocol for a prospective observational study.BMJ open · 2025Article
- Associations between financial toxicity, health-related quality of life, and well-being in Indonesian patients with breast cancer.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- The performance of the EQ-HWB-S as a measure of quality-of-life of caregivers in families that have experienced adverse events.The European journal of health economics : HEPAC : health economics in prevention and care · 2025Article
- Can items derived from international literature be used in national quality of life instruments? A qualitative study conceptualising the EQ-HWB in China.Journal of patient-reported outcomes · 2024Article
- The Validity of the EuroQol Health and Wellbeing Short Version (EQ-HWB-S) Instrument in Parents of Children With and Without Health Conditions.PharmacoEconomics · 2024Article
- Scoring the EQ-HWB-S: can we do it without value sets? A non-parametric item response theory analysis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024Article
- Content validity of the EQ-HWB and EQ-HWB-S in a sample of Italian patients, informal caregivers and members of the general public.Journal of patient-reported outcomes · 2024Article
- Extending the EQ-5D: the case for a complementary set of 4 psycho-social dimensions.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2023Article
- How important is subjective well-being for patients? A qualitative interview study of people with psoriasis.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Article
Corrections and comments
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Authors and funding
13 authors at 4 institutions in 2 countries.
Funding
Abstract
Economic evaluation combines costs and benefits to support decision-making when assessing new interventions using preference-based measures to measure and value benefits in health or health-related quality of life. These health-focused instruments have limited ability to capture wider impacts on informal carers or outcomes in other sectors such as social care. Sector-specific instruments can be used but this is problematic when the impact of an intervention straddles different sectors.An alternative approach is to develop a generic preference-based measure that is sufficiently broad to capture important cross-sector outcomes. We consider the options for the selection of domains for a cross-sector generic measure including how to identify domains, who should provide information on the domains and how this should be framed. Beyond domain identification, considerations of criteria and stakeholder needs are also identified.This paper sets out the case for an approach that relies on the voice of patients, social care users and informal carers as the main source of domains and describes how the approach was operationalised in the 'Extending the QALY' project which developed the new measure, the EQ-HWB (EQ health and wellbeing instrument). We conclude by discussing the strengths and limitations of this approach. The new measure should be sufficiently generic to be used to consistently evaluate health and social care interventions, yet also sensitive enough to pick up important changes in quality of life in patients, social care users and carers.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.