ArticleResearch involvement and engagement2021
Patient oriented research in mental health: matching laboratory to life and beyond in Canada.
Article in Research involvement and engagement, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Developing forensic patient-oriented research guidelines: a rapid review using an integrated knowledge translation approach.Frontiers in psychiatry · 2026Pooled it
- Guidelines, Frameworks, and Trainings on Lived Experience and Caregiver Engagement in Research: Common Threads With Specific Considerations for Specific Subpopulations.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Meta-Research on the Science of Lived Experience Engagement in Mental Health and Substance Use Health Research: A Scoping Review and Qualitative Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Finding meaning in the Maze (Out): a co-produced reflexive thematic analysis of patients' reflection tasks.Journal of eating disorders · 2026Article
- "Inclusivity requires an active effort": building an inclusive and diverse space when engaging people with lived and living experience and caregivers in mental health and substance use health research.Research involvement and engagement · 2025Article
- 'Every Voice Matters': A Photovoice Study on the Personal Impacts of Co-Production in Recovery Colleges.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Best Practices Guidelines for the Engagement of People With Lived Experience and Family Members in Mental Health and Substance Use Health Research: A Modified Delphi Consensus Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Considerations for engaging in patient-oriented research with injured workers.Frontiers in health services · 2025Article
- An in-depth understanding of stakeholders' experiences about their participation in the co-production of 'Maze Out': a serious game for the treatment of eating disorders.Journal of eating disorders · 2024Article
- Engagement of people with lived experience in studies published in high-impact psychiatry journals: meta-research review.Research involvement and engagement · 2024Review
- The elephant in the room: Family engagement in mental health and substance use research.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Lived experience engagement in mental health research: Recommendations for a terminology shift.Health expectations : an international journal of public participation in health care and health policy · 2023Article
- Engaging diverse patients in a diverse world: the development and preliminary evaluation of educational modules to support diversity in patient engagement research.Research involvement and engagement · 2023Article
- Research evidence and implementation gaps in the engagement of people with lived experience in mental health and substance use research: a scoping review.Research involvement and engagement · 2023Article
- Co-learning commentary: a patient partner perspective in mental health care research.Research involvement and engagement · 2023Article
- Considerations for supporting meaningful stakeholder engagement in global mental health research.Epidemiology and psychiatric sciences · 2022Article
- Automatic Diagnosis of Mental Healthcare Information Actionability: Developing Binary Classifiers.International journal of environmental research and public health · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
As patient-oriented research gains popularity in clinical research, the lack of patient input in foundational science grows more evident. Research has shown great utility in active partnerships between patient partners and scientists, yet many researchers are still hesitant about listening to the voices of those with lived experience guide and shape their experiments. Mental health has been a leading area for patient movements such as survivor-led research, however the stigma experienced by these patients creates difficulties not present in other health disciplines. The emergence of COVID-19 has also created unique circumstances that need to be addressed. Through this lens, we have taken experiences from our patient partners, students, and primary investigator to create recommendations for the better facilitation of patient-oriented research in foundational science in Canada. With these guidelines, from initial recruitment and leading to sustaining meaningful partnerships, we hope to encourage other researchers that patient-oriented research is necessary for the future of mental health research and foundational science.
Indexed as
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.