ArticleBMC medical ethics2021
Recognising values and engaging communities across cultures: towards developing a cultural protocol for researchers.
Article in BMC medical ethics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
12 citing papers in PubMed.
- Where to Next for Māori Health Research Review Processes? Insights Into the Indigenous Context: An Integrative Systematic Literature Review.Journal of the Royal Society of New Zealand · 2026Review
- Mental-Health Help-Seeking Among Muslims in the Liverpool City Region: A System-Informed Qualitative Study of Knowledge, Attitudes, Practices.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Bioethical considerations in deploying mobile mental health apps in LMIC settings: insights from the MITHRA pilot study in rural India.Frontiers in digital health · 2026Article
- Codesigning a Neurocognitive Assessment Protocol for Hyperphagia: Perspectives From Stakeholders in Prader-Willi Syndrome.Journal of intellectual disability research : JIDR · 2026Article
- Healing through heritage tourism: indigenous cultural practices and mental wellness in traditional communities.Frontiers in psychology · 2026Article
- Reimagining Assent: When Things Get Lost in Translation in International Pediatric Research.Asian bioethics review · 2025Article
- Reclaiming voices, rethinking change: a decolonial and knowledge-ecological analysis of SBCC nutrition interventions in Senegal.Frontiers in nutrition · 2025Article
- Creating culturally-informed protocols for a stunting intervention using a situated values-based approach (WeValue InSitu): a double case study in Indonesia and Senegal.BMC public health · 2024Article
- Improving access to SLE therapies in low and middle-income countries.Rheumatology (Oxford, England) · 2023Review
- The neuroscience of respect: insights from cross-cultural perspectives.Frontiers in psychology · 2023Review
- Ethical Issues in Conducting Cross-Cultural Research in Low-Income Countries: A Pakistani Perspective.Asian bioethics review · 2022Article
- Development of a Transcultural Social Ethical and Integrated Care Model, for Dependent and Older People Populations at Risk of Exclusion in the Mediterranean Sea Basin (TEC-MED): A Research Protocol.International journal of integrated careArticle
Corrections and comments
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Authors and funding
9 authors.
Funding
Abstract
Efforts to build research capacity and capability in low and middle income countries (LMIC) has progressed over the last three decades, yet it confronts many challenges including issues with communicating or even negotiating across different cultures. Implementing global research requires a broader understanding of community engagement and participatory research approaches. There is a considerable amount of guidance available on community engagement in clinical trials, especially for studies for HIV/AIDS, even culturally specific codes for recruiting vulnerable populations such as the San or Maori people. However, the same cannot be said for implementing research in global health. In an effort to build on this work, the Pakistan Institute of Living and Learning and University College London in the UK sought to better understand differences in beliefs, values and norms of local communities in Pakistan. In particular, they have sought to help researchers from high income countries (HIC) understand how their values are perceived and understood by the local indigenous researchers in Pakistan. To achieve this end, a group discussion was organised with indigenous researchers at Pakistan Institute of Living and Learning. The discussion will ultimately help inform the development of a cultural protocol for researchers from HIC engaging with communities in LMIC. This discussion revealed five common themes; (1) religious principles and rules, (2) differing concepts of and moral emphasis on autonomy and privacy, (3) importance of respect and trust; (4) cultural differences (etiquette); (5) custom and tradition (gift giving and hospitality). Based on the above themes, we present a preliminary cultural analysis to raise awareness and to prepare researchers from HIC conducting cross cultural research in Pakistan. This is likely to be particularly relevant in collectivistic cultures where social interconnectedness, family and community is valued above individual autonomy and the self is not considered central to moral thinking. In certain cultures, HIC ideas of individual autonomy, the notion of informed consent may be regarded as a collective family decision. In addition, there may still be acceptance of traditional professional roles such as 'doctor knows best', while respect and privacy may have very different meanings.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.