Evidence map›Paper›PMID 33902560›Full record

ArticleBMC medical ethics2021

Recognising values and engaging communities across cultures: towards developing a cultural protocol for researchers.

Rakhshi Memon, Muqaddas Asif, Ameer B Khoso, Sehrish Tofique, Tayyaba Kiran, Nasim Chaudhry, Nusrat Husain, Sarah J L Edwards, Pakistan Institute of Living and Learning (PILL)

Abstract read
In one paragraph

Article in BMC medical ethics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Review
  2. Mental-Health Help-Seeking Among Muslims in the Liverpool City Region: A System-Informed Qualitative Study of Knowledge, Attitudes, Practices.Health expectations : an international journal of public participation in health care and health policy · 2026
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Rakhshi MemonUniversity College London, London, UK. Rakhshi.memon.18@ucl.ac.uk.ORCID 0000-0002-6586-2248
Muqaddas AsifPakistan Institute of Living and Learning (PILL), Karachi, Pakistan.
Ameer B KhosoPakistan Institute of Living and Learning (PILL), Karachi, Pakistan.
Sehrish TofiquePakistan Institute of Living and Learning (PILL), Karachi, Pakistan.
Tayyaba KiranPakistan Institute of Living and Learning (PILL), Karachi, Pakistan.
Nasim ChaudhryPakistan Institute of Living and Learning (PILL), Karachi, Pakistan.
Nusrat HusainUniversity of Manchester, Manchester, UK.
Sarah J L EdwardsUniversity College London, London, UK.
Pakistan Institute of Living and Learning (PILL)

Funding

Medical Research Council MR/R022461/1
6 · The paper itself

Abstract

Efforts to build research capacity and capability in low and middle income countries (LMIC) has progressed over the last three decades, yet it confronts many challenges including issues with communicating or even negotiating across different cultures. Implementing global research requires a broader understanding of community engagement and participatory research approaches. There is a considerable amount of guidance available on community engagement in clinical trials, especially for studies for HIV/AIDS, even culturally specific codes for recruiting vulnerable populations such as the San or Maori people. However, the same cannot be said for implementing research in global health. In an effort to build on this work, the Pakistan Institute of Living and Learning and University College London in the UK sought to better understand differences in beliefs, values and norms of local communities in Pakistan. In particular, they have sought to help researchers from high income countries (HIC) understand how their values are perceived and understood by the local indigenous researchers in Pakistan. To achieve this end, a group discussion was organised with indigenous researchers at Pakistan Institute of Living and Learning. The discussion will ultimately help inform the development of a cultural protocol for researchers from HIC engaging with communities in LMIC. This discussion revealed five common themes; (1) religious principles and rules, (2) differing concepts of and moral emphasis on autonomy and privacy, (3) importance of respect and trust; (4) cultural differences (etiquette); (5) custom and tradition (gift giving and hospitality). Based on the above themes, we present a preliminary cultural analysis to raise awareness and to prepare researchers from HIC conducting cross cultural research in Pakistan. This is likely to be particularly relevant in collectivistic cultures where social interconnectedness, family and community is valued above individual autonomy and the self is not considered central to moral thinking. In certain cultures, HIC ideas of individual autonomy, the notion of informed consent may be regarded as a collective family decision. In addition, there may still be acceptance of traditional professional roles such as 'doctor knows best', while respect and privacy may have very different meanings.

Indexed as

BioethicsCultureGlobal HealthCommunity-Based Participatory ResearchCommunity ParticipationHumansInformed ConsentLondonPakistanResearch PersonnelTrustBioethicsCommunity engagementCultural protocolGlobal healthLow and middle income countries (LMIC)Researchers from high income countries (HIC)

Identifiers

PMID33902560
PMCPMC8072318

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.