ArticlePharmacoepidemiology and drug safety2021
Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico-administrative claims and patient-reported data: The chronic pain treatment cohort.
Article in Pharmacoepidemiology and drug safety, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
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Who cites it
17 citing papers in PubMed.
- The theory of planned behavior partly explains why adults with chronic musculoskeletal pain consider using medical cannabis for pain management.Scientific reports · 2026Article
- Strategies for Implementing Nursing Activities for Chronic Pain Management in Primary Care: Integrated Findings from a Sequential Mixed-Methods Study.Canadian journal of pain = Revue canadienne de la douleur · 2026Article
- Sex, gender, and sociodemographic factors associated with repeated prescription refills in chronic pain: insights from a prescription claims cohort study.Frontiers in pain research (Lausanne, Switzerland) · 2026Article
- A sex- and gender-based analysis plus of frequent healthcare utilization among individuals living with chronic pain: a cohort study.BMC health services research · 2025Article
- Physicians' and patients' perceived risks of chronic pain medication and co-medications in Quebec, Canada: a cross-sectional study.BMC primary care · 2025Article
- Optimal Information for Chronic Pain (OICP): Delphi Consensus on Patient Assessment and Interventional Techniques.Journal of pain research · 2025Article
- Pain relief and associated factors: a cross-sectional observational web-based study in a Quebec cohort of persons living with chronic pain.Frontiers in pain research (Lausanne, Switzerland) · 2024Article
- Where we live matters: a comparison of chronic pain treatment between remote and non-remote regions of Quebec, Canada.Frontiers in pain research (Lausanne, Switzerland) · 2024Article
- Trends in Prescription Chronic Pain Medication Use before and during the First Wave of the COVID-19 Pandemic in Québec, Canada: An Interrupted Time Series Analysis.International journal of environmental research and public health · 2023Article
- Pain Medications Used by Persons Living With Fibromyalgia: A Comparison Between the Profile of a Quebec Sample and Clinical Practice Guidelines.Canadian journal of pain = Revue canadienne de la douleur · 2023Article
- Experiences and Perceptions of Medical Cannabis among People Living with Chronic Pain and Community Pharmacists: A Qualitative Study in Canada.Canadian journal of pain = Revue canadienne de la douleur · 2023Article
- Polypharmacy and Excessive Polypharmacy Among Persons Living with Chronic Pain: A Cross-Sectional Study on the Prevalence and Associated Factors.Journal of pain research · 2023Article
- Swallowing the pill of adverse effects: A qualitative study of patients' and pharmacists' experiences and decision-making regarding the adverse effects of chronic pain medications.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Prevalence of cannabis use for pain management in Quebec: A post-legalization estimate among generations living with chronic pain.Canadian journal of pain = Revue canadienne de la douleur · 2022Article
- Gender Differences in Medication Adverse Effects Experienced by People Living With Chronic Pain.Frontiers in pain research (Lausanne, Switzerland) · 2022Article
- Chronic pain patients' willingness to share personal identifiers on the web for the linkage of medico-administrative claims and patient-reported data: The chronic pain treatment cohort.Pharmacoepidemiology and drug safety · 2021Article
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Corrections and comments
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe linkage between patient-reported data and medico-administrative claims is of great interest for epidemiologic research. The goal of this study was to assess the willingness of people living with chronic pain to share personal identifiers on the web for the linkage of medico-administrative and patient-reported data.
methodsThis methodological investigation was achieved in the context of the implementation of the chronic pain treatment (COPE) cohort. A web-based recruitment initiative targeting adults living with chronic pain was conducted in the province of Quebec (Canada).
resultsA total of 1935 participants completed the questionnaire (mean age: 49.86 ± 13.27; females: 83.69%), 921 (47.60%) of which agreed to data linkage and shared their personal identifiers (name, date of birth, health insurance number online). The most common reasons for refusal were: (1) concerns regarding data security/privacy (25.71%) and (2) the belief that the requested data were too personal/intrusive (13.52%). Some participants did not understand the relevance of data linkage (11.81%). Participants from the COPE cohort and those from the subsample who agreed to data linkage were comparable to other random samples of chronic pain individuals in terms of age and pain characteristics.
conclusionsAlthough approximately half of the participants refused data linkage, our approach allowed for the implementation of a data platform that contains a diverse and substantial sample. This investigation has also led to the formulation of recommendations for web-based data linkage, including placing items designed to assess willingness to share personal identifiers at the end of the questionnaire, adding explanatory videos, and using a mixed-mode questionnaire.
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