ArticleERJ open research2021
REINVENT: ERS International survey on REstrictive thoracic diseases IN long term home noninvasive VENTilation.
Article in ERJ open research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 28 citations in OpenAlex.
- Breathing Under Pressure: Psychological Burden and Recovery Trajectories in Patients Receiving Non-Invasive Respiratory Support from Acute COVID-19 to Respiratory Rehabilitation.Medical sciences (Basel, Switzerland) · 2026Article
- Current Standards and Future Directions of Duchenne Muscular Dystrophy Respiratory Care: The PPMD Italy Meeting Report.Pediatric pulmonology · 2025Article
- Long-term Home Mechanical Ventilation of Children in İstanbul.Thoracic research and practice · 2025Article
- Concise review of end of life and palliative care in neuromuscular pathologies: still a long pathway ahead.Acta myologica : myopathies and cardiomyopathies : official journal of the Mediterranean Society of Myology · 2024Review
- International Survey of the Tools Used for Assessment, Monitoring and Management of Home Mechanical Ventilation Patients.Journal of clinical medicine · 2023Article
- Getting It Right in Restrictive Lung Disease.Journal of clinical medicine · 2023Review
- What Circuits, Masks and Filters Should Be Used in Home Non-Invasive Mechanical Ventilation.Journal of clinical medicine · 2023Review
- Noninvasive respiratory assistance as aid for respiratory care in neuromuscular disorders.Frontiers in rehabilitation sciences · 2023Review
- A Novel Scale to Assess Humidification during Noninvasive Ventilation: A Prospective Observational Study.Canadian respiratory journal · 2023Observational
- Life Experiences in Neuromuscular Tracheotomized Patients in Times of Covid-19.Journal of neuromuscular diseases · 2023Article
- Hypercapnia from Physiology to Practice.International journal of clinical practice · 2022Review
- Using Telemedicine to Monitor the Patient with Chronic Respiratory Failure.Life (Basel, Switzerland) · 2021Review
- Patient's treatment burden related to care coordination in the field of respiratory diseases.Breathe (Sheffield, England) · 2021Review
- A history of home mechanical ventilation: The past, present and future.Chronic respiratory diseaseReview
Corrections and comments
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Authors and funding
10 authors at 9 institutions in 5 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
BACKGROUND AND
aimLittle is known about the current use of long-term home noninvasive ventilation (LTHNIV) in restrictive thoracic diseases, including chest wall disorders and neuromuscular disorders (NMD). This study aimed to capture the pattern of LTHNIV in patients with restrictive thoracic diseases
methodsThe survey involved European Respiratory Society (ERS) Assembly 2.02 (NIV-dedicated group), from October to December 2019.
results166 (22.2%) out of 748 members from 41 countries responded; 80% were physicians, of whom 43% worked in a respiratory intermediate intensive care unit. The ratio of NMD to chest wall disorders was 5:1, with amyotrophic lateral sclerosis the most frequent indication within NMD (78%). The main reason to initiate LTHNIV was diurnal hypercapnia (71%). Quality of life/sleep was the most important goal to achieve. In 25% of cases, clinicians based their choice of the ventilator on patients' feedback. Among NIV modes, spontaneous-timed pressure support ventilation (ST-PSV) was the most frequently prescribed for day- and night-time. Mouthpieces were the preferred daytime NIV interface, whereas oro-nasal masks the first choice overnight. Heated humidification was frequently added to LTHNIV (72%). Single-limb circuits with intentional leaks (79%) were the most frequently prescribed. Follow-up was most often provided in an outpatient setting.
conclusionsThis ERS survey illustrates physicians' practices of LTHNIV in patients with restrictive thoracic diseases. NMD and, specifically, amyotrophic lateral sclerosis were the main indications for LTHNIV. NIV was started mostly because of diurnal hypoventilation with a primary goal of patient-centred benefits. Bi-level ST-PSV and oro-nasal masks were more likely to be chosen for providing NIV. LTHNIV efficacy was assessed mainly in an outpatient setting.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.