Trial reportThe American journal of hospice & palliative care2022
Reluctance to Accept Palliative Care and Recommendations for Improvement: Findings From Semi-Structured Interviews With Patients and Caregivers.
Trial report in The American journal of hospice & palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed.
- Improving Community-Based Palliative Care Explanations: Insights From Persons Declining Services.The American journal of hospice & palliative care · 2026Article
- Why Is Community-Based Palliative Care Declined? Older Adult, Caregiver, and Provider Perspectives.Journal of palliative medicine · 2026Article
- An analysis of palliative care in adolescents and young adults with soft tissue and bone sarcomas.Palliative care and social practice · 2026Article
- Developing the Right for You? Intervention to improve engagement in community-based palliative care: a feasibility study and pilot test.The journals of gerontology. Series A, Biological sciences and medical sciences · 2025Article
- The Practices of Portuguese Primary Health Care Professionals in Palliative Care Access and Referral: A Focus Group Study.Healthcare (Basel, Switzerland) · 2025Article
- Integrating palliative care into multiple myeloma management : Optimizing quality of life across the disease continuum.Wiener klinische Wochenschrift · 2025Article
- Developing theCurrent oncology (Toronto, Ont.) · 2025Article
- The Paradox of Choice in Palliative Care Decision-Making in Managed Long-Term Care: A Qualitative Study.Home health care management & practice · 2025Article
- Palliative, hospice, and end-of-life care special issue introductory editorial.PEC innovation · 2024Article
- Early Palliative Care Following Aborted Cancer Surgery: Results of a Prospective Feasibility Trial.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2024Article
- Patients and Healthcare Providers' Perspectives on Patient Experience Factors and a Model of Patient-Centered Care Communication: A Systematic Review.Healthcare (Basel, Switzerland) · 2024Review
- Providing clarity: communicating the benefits of palliative care beyond end-of-life support.Palliative care and social practice · 2024Article
- Informed Consent and Surrogate Interference at the Initiation of Community-Based Palliative Care Services.Palliative medicine reports · 2024Article
- Considerations Regarding Online Group Psychotherapy Sessions for Breast Cancer Patients in Active Phase of Oncological Treatment.Healthcare (Basel, Switzerland) · 2023Article
- Disparities in Referrals to End-of-Life Care in Eligible Hepatocellular Carcinoma Patients.Digestive diseases and sciences · 2023Article
- Need of community-based palliative care in rural India and factors that influence its sustainability: a comprehensive exploration using qualitative methodology in rural Puducherry, India.Palliative care and social practice · 2023Article
- Reframing Patient Experience Approaches and Methods to Achieve Patient-Centeredness in Healthcare: Scoping Review.International journal of environmental research and public health · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
Abstract
backgroundDespite some insurance plans now paying for home-based palliative care, recent reports have suggested that insurance coverage for palliative care may be insufficient in expanding patient access to home-based palliative care.
aimTo identify patients' and caregivers' perceived barriers to home-based palliative care and their recommendations for overcoming these barriers.
designWe conducted a qualitative study using semi-structured individual interviews. Our interview protocol elicited participants' perspectives on home-based palliative care services; positive and negative aspects of the palliative program explanation; and suggestions for improving messaging around home-based palliative care. SETTING/
participantsTwenty-five participants (patients, proxies, and their caregivers) who were eligible for a randomized controlled trial of home-based palliative care were interviewed by telephone.
resultsThemes related to home-based palliative care referral barriers included reluctance to have home visits, enrollment timing, lack of palliative care knowledge, misconceptions about palliative care, and patients' self-perceived health condition. Themes related to recommendations for overcoming these obstacles included ensuring that palliative care referrals come from healthcare providers or insurance companies and presenting palliative care services more clearly.
conclusionFindings reinforce the need for additional palliative care education among patients with serious illness (and their caregivers) and the importance of delivering palliative care information and referrals from trusted sources.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.