ArticleLearning health systems2021
Measuring engagement in a collaborative learning health system: The case of ImproveCareNow.
Article in Learning health systems, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 24 citations in OpenAlex.
- The Development and Co-Production of a Caregiver Coping Resource for Pediatric Inflammatory Bowel Disease and Autoimmune Liver Disease.Learning health systems · 2026Article
- Evaluating health organization readiness for implementing a learning health system: a scoping review.Health research policy and systems · 2025Article
- Engagement as a mechanism of action in collaborative learning health systems.Learning health systems · 2025Article
- An agent-based model to advance the science of collaborative learning health systems.PloS one · 2025Article
- Interventions to improve system-level coproduction in the Cystic Fibrosis Learning Network.BMJ open quality · 2024Article
- Is it "all in the bag?" Multidisciplinary perspectives on ostomy surgery in pediatric IBD across the ImproveCareNow network.JPGN reports · 2024Article
- Roles of Health Literacy in Relation to Social Determinants of Health and Recommendations for Informatics-Based Interventions: Systematic Review.Online journal of public health informatics · 2024Review
- Data to knowledge to improvement: creating the learning health system.BMJ (Clinical research ed.) · 2024Article
- Conceptualizing and redefining successful patient engagement in patient advisory councils in learning health networks.Learning health systems · 2024Article
- Toward an ontology of collaborative learning healthcare systems.Learning health systems · 2022Article
- Cystic fibrosis learning network telehealth innovation lab during the COVID-19 pandemic: a success QI story for interdisciplinary care and agenda setting.BMJ open quality · 2022Article
- The role of co-production in Learning Health Systems.International journal for quality in health care : journal of the International Society for Quality in Health Care · 2021Review
- Getting what is needed, when it's needed: Sharing information, knowledge, and know-how in a Collaborative Learning Health System.Learning health systems · 2021Article
- A collaborative learning health system agent-based model: Computational and face validity.Learning health systems · 2021Article
- Measuring engagement in a collaborative learning health system: The case of ImproveCareNow.Learning health systems · 2021Article
Corrections and comments
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Authors and funding
5 authors at 1 institution in 1 country.
Funding
Abstract
backgroundCollaborative learning health systems have demonstrated improved outcomes for a range of different chronic conditions. Patient and healthcare provider engagement in these systems is thought to be associated with improved outcomes. We have adapted an observational framework to measure, and track over time, engagement in ImproveCareNow, a collaborative learning health system for children with inflammatory bowel disease.
introductionWe developed a categorical classification scheme for engagement in ImproveCareNow. Each tier is defined in terms of observable individual behaviors. When an individual completes one or more qualifying behavior, s/he is classified as engaged at that tier. Individuals are entered into a database, which is accessible to care centers throughout the ImproveCareNow network. Database records include fields for individual name, behavior type, time, place, and level of engagement.
resultsThe resulting system is employed at 79 ImproveCareNow care centers in the United States. The system recognizes four levels of engagement. Behaviors are recorded in a managed vocabulary and recorded in an online database. The database is queried weekly for individual engagement behaviors, which are tracked longitudinally. Center- and network-level statistics are generated and disseminated to stakeholders.
conclusionIt is possible to monitor longitudinal engagement in a collaborative learning health system, thereby charting progress toward engagement goals and enabling quantitative evaluation of interventions aimed at increasing engagement.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.