Evidence map›Paper›PMID 33879149›Full record

SynthesisBMC health services research2021

Evaluating health service outcomes of public involvement in health service design in high-income countries: a systematic review.

Nicola Lloyd, Amanda Kenny, Nerida Hyett

Abstract readSystematic Review
In one paragraph

Synthesis in BMC health services research, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 24 papers, 4 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
24citing papers in PubMed, 4 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

24 citing papers in PubMed, 4 syntheses or guidelines pooled it.

  1. Pooled it
  2. Evaluating Process and Outcomes of Public Involvement in Applied Health and Social Care Research: A Rapid Systematic Review.Health expectations : an international journal of public participation in health care and health policy · 2025
    Pooled it
  3. Pooled it
  4. Pooled it
  5. Article
  6. Development of a Patient and Carer Advisory Board to Co-Design Health Services Research for the Quality of Care of People With Dementia.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  7. Article
  8. Promoting informed health choices: the long and winding road.Journal of the Royal Society of Medicine · 2025
    Article
  9. Continuity Is Essential: The Experiences of Co-Design Participants During the Implementation of a New Health Service.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  10. Review
  11. Article
  12. Operationalising Patient Engagement Through the Alberta Cancer Diagnosis Initiative: Recruitment Strategies for Diverse Populations in Health System Improvement.Health expectations : an international journal of public participation in health care and health policy · 2025
    Article
  13. Article
  14. Article
  15. Article
  16. Article
  17. Article
  18. Comparing an in-person workshop and a postal Delphi survey for involving health service users in health care and health research prioritization.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  19. Article
  20. Implementing public involvement throughout the research process-Experience and learning from the GPs in EDs study.Health expectations : an international journal of public participation in health care and health policy · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Nicola LloydViolet Vines Marshman Centre for Rural Health Research, La Trobe Rural Health School, La Trobe University, Bendigo, Australia. N.Lloyd@latrobe.edu.au.ORCID http://orcid.org/0000-0003-4104-3405
Amanda KennyViolet Vines Marshman Centre for Rural Health Research, La Trobe Rural Health School, La Trobe University, Bendigo, Australia.
Nerida HyettViolet Vines Marshman Centre for Rural Health Research, La Trobe Rural Health School, La Trobe University, Bendigo, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundInternationally, it is expected that health services will involve the public in health service design. Evaluation of public involvement has typically focused on the process and experiences for participants. Less is known about outcomes for health services. The aim of this systematic review was to a) identify and synthesise what is known about health service outcomes of public involvement and b) document how outcomes were evaluated.

methodsSearches were undertaken in MEDLINE, EMBASE, The Cochrane Library, PsycINFO, Web of Science, and CINAHL for studies that reported health service outcomes from public involvement in health service design. The review was limited to high-income countries and studies in English. Study quality was assessed using the Mixed Methods Appraisal Tool and critical appraisal guidelines for assessing the quality and impact of user involvement in health research. Content analysis was used to determine the outcomes of public involvement in health service design and how outcomes were evaluated.

resultsA total of 93 articles were included. The majority were published in the last 5 years, were qualitative, and were located in the United Kingdom. A range of health service outcomes (discrete products, improvements to health services and system/policy level changes) were reported at various levels (service level, across services, and across organisations). However, evaluations of outcomes were reported in less than half of studies. In studies where outcomes were evaluated, a range of methods were used; most frequent were mixed methods. The quality of study design and reporting was inconsistent.

conclusionWhen reporting public involvement in health service design authors outline a range of outcomes for health services, but it is challenging to determine the extent of outcomes due to inadequate descriptions of study design and poor reporting. There is an urgent need for evaluations, including longitudinal study designs and cost-benefit analyses, to fully understand outcomes from public involvement in health service design.

Indexed as

Health ServicesIncomeDeveloped CountriesHumansLongitudinal StudiesUnited KingdomCo-designEvaluationHealth service designOutcomesPublic involvementSystematic review

Identifiers

PMID33879149
PMCPMC8056601

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.