ArticleHealth informatics journal
A pilot comparison of medical records sensitivity perspectives of patients with behavioral health conditions and healthcare providers.
Article in Health informatics journal. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
11 citing papers in PubMed.
- Does telemedicine hold the key for reproductive health care? A quantitative examination of women's intentions toward use and accurate information disclosure.Health services research · 2025Article
- Balancing Privacy, Trust, and Equity: Patient Perspectives on Substance Use Disorder Data Sharing.International journal of environmental research and public health · 2025Article
- Advancing Health Equity Through Substance Use Medical Record Data Sharing: Insights from Healthcare Providers.International journal of environmental research and public health · 2025Article
- Views on sharing mental health data for research purposes: qualitative analysis of interviews with people with mental illness.BMC medical ethics · 2023Article
- An ethical code for collecting, using and transferring sensitive health data: outcomes of a modified Policy Delphi process in Singapore.BMC medical ethics · 2023Article
- Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 1): Focus Group Study.JMIR mental health · 2022Article
- Behavioral Health Professionals' Perceptions on Patient-Controlled Granular Information Sharing (Part 2): Focus Group Study.JMIR mental health · 2022Article
- Mental health professionals' perceptions on patients control of data sharing.Health informatics journal · 2020Article
- Physicians differ in their perceptions of sensitive medical records: Survey and interview study.Health informatics journalArticle
- My data choices: Pilot evaluation of patient-controlled medical record sharing technology.Health informatics journalArticle
- What do patients consider sensitive health information? A cross-sectional survey of national patient portal users.Digital healthArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
7 authors.
Funding
Abstract
This pilot study compares medical record data sensitivity (e.g., depression is sensitive) and categorization perspective (e.g., depression categorized as mental health information) of patients with behavioral health conditions and healthcare providers using a mixed-methods approach employing patient's own EHR. Perspectives of 25 English- and Spanish-speaking patients were compared with providers. Data categorization comparisons resulted in 66.3% agreements, 14.5% partial agreements, and 19.3% disagreements. Sensitivity comparisons obtained 54.5% agreement, 11.9% partial agreement, and 33.6% disagreements. Patients and providers disagreed in classification of genetic data, mental health, drug abuse, and physical health information. Factors influencing patients' sensitivity determination were sensitive category comprehension, own experience, stigma towards category labels (e.g., drug abuse), and perception of information applicability (e.g., alcohol dependency). Knowledge of patients' sensitivity perceptions and reconciliation with providers could expedite the development of granular and personalized consent technology.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.