Evidence map›Paper›PMID 33871863›Full record

ArticleMethods in molecular biology (Clifton, N.J.)2021

Changing Health-Related Behaviors 1: Patient-Oriented Research and Patient Engagement in Health Research.

Catherine Street, Laurie K Twells, Toni Leamon, Lynn Taylor, Holly Etchegary

Abstract read
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In one paragraph

Article in Methods in molecular biology (Clifton, N.J.), 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
  2. Review
  3. Article
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Catherine StreetInitiative, NL SUPPORT, Strategy for Patient-Oriented Research (SPOR-CIHR), Faculty of Medicine, Memorial University of Newfoundland, St. John's, NL, Canada.
Laurie K TwellsSchool of Pharmacy and Faculty of Medicine, NL SUPPORT, Strategy for Patient-Oriented Research (SPOR-CIHR), Memorial University of Newfoundland, St. John's, NL, Canada.
Toni LeamonNL SUPPORT Patient Advisory Council, Strategy for Patient-Oriented Research (SPOR-CIHR), Memorial University of Newfoundland (Grenfell Campus), St. John's, NL, Canada.
Lynn TaylorQuality of Care NL/Initiative, Memorial University of Newfoundland, St. John's, NL, Canada.
Holly EtchegaryStrategy for Patient-Oriented Research (SPOR-CIHR), Faculty of Medicine, Memorial University, St. John's, NL, Canada. holly.etchegary@med.mun.ca.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Engaging with patients and families is largely routine at the healthcare service or provision level. The concept of patient engagement in health research has a more recent history but is now often endorsed by leading journals and funders. Often described as research being done with patients, rather than "to" or "about" them, patient-oriented research is distinguished by patients serving as research partners rather than passive study subjects. It is generally accepted that patient engagement in health research is worthwhile and can contribute to better quality research. However, questions remain about how to do it, what values underlie it, and how patients can be engaged as partners in health research. In this chapter, we attempt to answer these questions and provide tangible examples of patient-oriented research in our province of Newfoundland and Labrador (NL), Canada. While there is no single approach to patient engagement in health research, we hope the examples provided herein help demonstrate how it might be done and assist research teams to better integrate and utilize patients' valuable input.

Indexed as

CanadaHealth BehaviorHealth Services ResearchHumansPatient ParticipationHealth researchPatient engagementPatient-oriented research

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.