Evidence map›Paper›PMID 33870784›Full record

ArticleWestern journal of nursing research2022

Recruiting Persons with Dementia and Caregivers in a Clinical Trial: Dyads Perceptions.

Miranda V McPhillips, Darina V Petrovsky, Glenna S Brewster, Junxin Li, Nalaka S Gooneratne, Nancy A Hodgson, Justine S Sefcik

Open access · greenAbstract read
In one paragraph

Article in Western journal of nursing research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed, 2 pooled it
1.8field-weighted citation impact, top 16% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 2 syntheses or guidelines pooled it, 12 citations in OpenAlex.

  1. Benefits and Burdens of Research Participation: A Mixed Methods Systematic Review in Palliative and End-of-Life Care.Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association · 2025
    Pooled it
  2. Pooled it
  3. Trial
  4. Article
  5. Article
  6. "And Does That Necessarily Mean Absolutely Alzheimer's?" An Analysis of Questions Raised Following Amyloid PET Results Disclosure.The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry · 2024
    Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 1 country.

Miranda V McPhillipsSchool of Nursing, University of Pennsylvania, Philadelphia, PA, USA.ORCID 0000-0002-0741-1545
Darina V PetrovskySchool of Nursing, University of Pennsylvania, Philadelphia, PA, USA.ORCID 0000-0002-3109-1633
Glenna S BrewsterNell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA, USA.ORCID 0000-0001-7664-9381
Junxin LiSchool of Nursing, John Hopkins University, Baltimore, MD, USA.
Nalaka S GooneratneDivision of Geriatric Medicine, Department of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Nancy A HodgsonSchool of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
Justine S SefcikCollege of Nursing and Health Professions, Drexel University, Philadelphia, PA, USA.
University of Pennsylvania · USDrexel University · USEmory University · USJohns Hopkins University · US

Funding

Phenotypic Diversity in COVID-19UL1TR001878 · NCATS · UNIVERSITY OF PENNSYLVANIA · PI FITZGERALD, GARRET A · 2016 to 2025
$102.4M
The Role of Palliative Care Interventions to Reduce Circadian Rhythm Disorders in Persons with DementiaR01NR015226 · NINR · UNIVERSITY OF PENNSYLVANIA · PI HODGSON, NANCY A · 2016 to 2020
$3.0M
A Personalized Behavioral Intervention to Improve Physical Activity, Sleep and Cognition in Sedentary Older AdultsR00NR016484 · NINR · JOHNS HOPKINS UNIVERSITY · PI LI, JUNXIN · 2019 to 2021
$996k
Multicomponent Behavioral Sleep Intervention for Insomnia in Older Adults with Mild Cognitive ImpairmentK23NR018487 · NINR · UNIVERSITY OF PENNSYLVANIA · PI MCPHILLIPS, MIRANDA VARRASSE · 2019 to 2021
$496k
A Person-Centered Environmental and Sensory Intervention for Nursing Home Residents with Dementia who Exhibit Persistent VocalizationsK23NR018673 · NINR · DREXEL UNIVERSITY · PI SEFCIK, JUSTINE SUZETTE · 2020 to 2022
$461k
The feasibility of a tailored music intervention to reduce symptoms of sleep disruption in older adults with dementiaF32AG060630 · NIA · UNIVERSITY OF PENNSYLVANIA · PI PETROVSKY, DARINA V. · 2018 to 2020
$188k
A Personalized Behavioral Intervention to Improve Physical Activity, Sleep and Cognition in Sedentary Older AdultsK99NR016484 · NINR · UNIVERSITY OF PENNSYLVANIA · PI LI, JUNXIN · 2017 to 2018
$185k
NCATS NIH HHS UL1 TR001878NIA NIH HHS F32 AG060630NINR NIH HHS K23 NR018487NINR NIH HHS K23 NR018673NINR NIH HHS K99 NR016484NINR NIH HHS R00 NR016484NINR NIH HHS R01 NR015226
6 · The paper itself

Abstract

Recruitment for dementia research is challenging and costly. Using Ajzen's Theory of Planned Behavior we explored attitudes, perceived norms, and perceived behavioral control of persons living with dementia (PLWD) and their caregivers who participated in one clinical trial to better understand factors that influence dyads' decisions to enroll. We conducted semi-structured telephone interviews with 12 PLWD and 9 caregivers and utilized directed content analysis. Categories connected with positive attitudes about study enrollment were personal desires of wanting to learn and in-person meetings with knowledgeable staff. Additionally, participants said the money always helps in terms of the financial incentive. Participants reported enrolling to support another person (perceived norm). Study requirements were thought to be easy (perceived behavioral control). Participants highlighted the importance of flexible scheduling and study tasks being completed at their home. Findings can inform future recruitment efforts and should be investigated as effective recruitment methods in other clinical trials.

Indexed as

CaregiversDementiaHumansTelephonecaregiversdementiadyadmethodspopulation focusqualitativerecruitment

Identifiers

PMID33870784
PMCPMC8522183
OpenAlexW3153236877

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.