ArticleFrontiers in sociology2019
Power, Privilege and Knowledge: the Untenable Promise of Co-production in Mental "Health".
Article in Frontiers in sociology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 99 papers, 6 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
99 citing papers in PubMed, 6 syntheses or guidelines pooled it.
- Key Components and Barriers in Web-Based Suicide Prevention Gatekeeper Training: Systematic Narrative Review.Journal of medical Internet research · 2026Pooled it
- Facilitators of and barriers to patient and public involvement in mental health research within university settings: a systematic review and meta-synthesis.Psychological medicine · 2025Pooled it
- What Do We Know About Sharing Power in Co-Production in Mental Health Research? A Systematic Review and Thematic Synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Evaluating the role and effectiveness of co-produced community-based mental health interventions that aim to reduce suicide among adults: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- Identifying evidence of the effectiveness of photovoice: a systematic review and meta-analysis of the international healthcare literature.Journal of public health (Oxford, England) · 2022Pooled it
- Interventions for the prevention of adrenal crisis in adults with primary adrenal insufficiency: a systematic review.European journal of endocrinology · 2022Pooled it
- Embedding patient and public involvement in dementia research: Reflections from experiences during the 'Journeying through Dementia' randomised controlled trial.Dementia (London, England) · 2022Trial
- Agile Co-design in Public Mental Health: An Integrated Model for Continuous Service Improvement.Community mental health journal · 2026Article
- Using Paulo Freire's philosophy to share power: early insights from planning for the co-production of knowledge in research.Research involvement and engagement · 2026Review
- Basaglia: the psychiatrist as intellectual, theoretician, and activist for a dialogic citizen psychiatry.Social psychiatry and psychiatric epidemiology · 2026Article
- Do new labels solve old problems? Conceptual, ethical, and clinical challenges of constructing restrictive eating behaviours as "self-harm".Journal of eating disorders · 2026Article
- Co-Design With Mothers and Professionals to Enhance Care for Mothers Experiencing Adversity: Development of the METIC Model.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Young people's lived experience expertise: Insights from the DigiCAT project to develop a counterfactual analysis tool for mental health data.JCPP advances · 2026Article
- Turning the tables: creating space for lived experience leadership in research.Research involvement and engagement · 2026Article
- Can co-designing interventions with affected communities help prevent violence against women? Findings from a process evaluation of the E le Saua le Alofa (Love Shouldn't Hurt) pilot in Samoa.Health policy and planning · 2026Article
- Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement.Research involvement and engagement · 2026Article
- A rapid evaluation of the reporting and publishing practices of patient and public involvement and engagement in health research within a UK university institute.Research involvement and engagement · 2026Review
- Voices from the territory and living care networks: facilitators and barriers to implementing peer support in community mental health services in Brazil.BMC public health · 2026Article
- Co-design rationales as living documents for reporting the exchange of experiential, professional and scientific perspectives in mental health care innovation.PLOS mental health · 2026Article
- Co-producing adult attention-deficit/hyperactivity disorder (ADHD) care in South Africa: A patient-centred framework for agency, trust, satisfaction and continuity.The South African journal of psychiatry : SAJP : the journal of the Society of Psychiatrists of South Africa · 2026Article
39 more citing papers are in PubMed but not listed here.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
This paper examines the concept and practice of coproduction in mental health. By analyzing personal experience as well as the historical antecedents of coproduction, we argue that the site of coproduction is defined by the legacy of the Enlightenment and its notions of "reason" and "the cognitive subject." We show the enduring impact of these notions in producing and perpetuating the power dynamics between professionals, researchers, policy makers and service users within privileged sites of knowledge production, whereby those deemed to lack reason-the mad and the racialized mad in particular-and their knowledge are radically inferiorised. Articulating problems in what is considered knowledge and methods of knowing, we argue that modern "psy" sciences instantiates the privilege of reason as well as of whiteness. We then examine how the survivor movement, and the emergent survivor/mad knowledge base, duplicates white privilege even as it interrogates privileges of reason and cognition. Describing how we grapple with these issues in an ongoing project-EURIKHA-which aims to map the knowledge produced by service users, survivors and persons with psychosocial disabilities globally, we offer some suggestions. Coproduction between researchers, policy makers and those of us positioned as mad, particularly as mad people of color, we argue, cannot happen in knowledge production environments continuing to operate within assumptions and philosophies that privilege reason as well as white, Eurocentric thinking. We seek not to coproduce but to challenge and change thinking and support for psychosocial suffering in contexts local to people's lives.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.