ArticleMedical journal, Armed Forces India2021
Health-related quality of life and coping strategies among families with Down syndrome children in South India.
Article in Medical journal, Armed Forces India, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Religious Coping in Parents of Children with Down Syndrome: A Systematic Review of the Literature.Journal of religion and health · 2025Pooled it
- Between care and collapse: the hidden health and emotional struggles of Saudi mothers of children with Down syndrome.Frontiers in psychology · 2026Article
- A multi-center cross-sectional comparison of parent-reported quality of life and bowel function between anorectal malformation and Hirschsprung's disease patients with versus those without Down syndrome.Pediatric surgery international · 2024Article
- Adaptation at the Family Level in Families of Individuals With Down Syndrome: A Scoping Review.Journal of family nursing · 2023Article
- Indicators of health in Down syndrome: A virtual focus group study with patients and their parents.Journal of applied research in intellectual disabilities : JARID · 2023Article
- Economic burden on caregivers or parents with Down syndrome children-a systematic review protocol.Systematic reviews · 2023Article
- The quality of life of parents of children with down syndrome in a tertiary care hospital: A qualitative research study at Saudi Arabia.Annals of medicine and surgery (2012) · 2022Article
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDown Syndrome (DS) is the most common chromosomal disorder associated with intellectual disability. Besides clinical management, additional support to cope with the demands of life is also necessary. These parents are frequently unstable and forego their Quality of Life (QoL), suffer additional economic difficulties, ill health and have lower well-being than families without disabilities. Hence, the study intends to evaluate the Health-Related QoL (HR-QoL) and coping strategies among families of DS children.
methodsThis explorative, cross-sectional study was conducted among parents/caregivers of DS children (
resultsMost DS children were upper and upper-middle class of urban background. The mean score of the QoL of the families was found to be 68.98%. The least and the most affected domains were cognitive functioning (71.67%) and worry (57.33%), respectively. Maximum coping was through the instrumental social support, active coping and religious coping. Though 27.45% were upset with the diagnosis, most had a "feeling of love" towards the child (72.55%). 50.98% had limited knowledge about DS and lacked organizational support (60.78%).
conclusionWith increasing life expectancy, the gap continues concerning the assessment of needs beyond medical aid among DS children. Better HR-QoL and coping with the stress could be ensured by the provision of comprehensive health policies inclusive of training programs, stress management, as well as psychosocial and organizational support across any socio-economic strata.
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