ArticlePalliative medicine2021
Culture in the spotlight-cultural adaptation and content validity of the integrated palliative care outcome scale for dementia: A cognitive interview study.
Article in Palliative medicine, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.
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Who cites it
14 citing papers in PubMed, 27 citations in OpenAlex.
- Developing information material to support the assessment of palliative care needs in dementia: a qualitative participatory approach.BMC palliative care · 2026Article
- Psychometric properties of the Rowland Universal Dementia Assessment Scale - Peruvian Version among Indigenous Amazonian communities.NPJ dementia · 2026Article
- Adaptation and field testing of an observational assessment tool for autism diagnosis in Western Kenya.Frontiers in psychiatry · 2026Article
- Internal consistency and structural validity of the Swiss easy-read Integrated Palliative Care Outcome Scale for People with dementia: a secondary exploratory factor analysis.BMC palliative care · 2025Article
- Cross-cultural translation and linguistic validation of the eating motivation survey among older adults in the Chinese context.Frontiers in nutrition · 2025Article
- Article
- The e-cigarette assessment for youth-Revised (EAsY-R): Preliminary results of a pilot study of measure refinement via cognitive interviewing.Journal of research on adolescence : the official journal of the Society for Research on Adolescence · 2024Article
- Validation of the Chinese version of the resilience scale for the oldest-old.Frontiers in psychology · 2023Article
- Inter-rating reliability of the Swiss easy-read integrated palliative care outcome scale for people with dementia.PloS one · 2023Article
- Translation and cultural adaptation of the Integrated Palliative care Outcome Scale for Dementia (IPOS-Dem) to Swedish.BMC nursing · 2022Article
- Integrated Palliative Outcome Scale for People with Dementia: easy language adaption and translation.Journal of patient-reported outcomes · 2022Article
- Translation and Cross-Cultural Adaptation of Post-Stroke Checklist into Mandarin: A Cognitive Interview Study.Neuropsychiatric disease and treatment · 2022Article
- Level of Knowledge and Attitudes Towards Palliative Care for People with Advanced Dementia in Spain: Role of Professional and Academic Factors.Current Alzheimer research · 2022Article
- Adaptation of the Australian Palliative Care Phase concept to the German palliative care context: a mixed-methods approach using cognitive interviews and cross-sectional data.BMC palliative care · 2021Article
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Authors and funding
9 authors at 5 institutions in 3 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDementia is a life-limiting disease with high symptom burden. The Integrated Palliative Care Outcome Scale for Dementia (IPOS-Dem) is the first comprehensive person-centered measure to identify and measure palliative care needs of people with dementia. However, such a measure is missing in the German health care system.
aimTo develop a culturally adapted German version of the IPOS-Dem and determine its content validity as a foundation for comprehensive psychometric testing.
designCognitive interview study with intermittent analysis and questionnaire adaptation. Interview guide and coding frame followed thematic analysis according to Willis complemented by Tourangeau's model of cognitive aspects of survey methodology: comprehension, retrieval, judgment, response.
participantsPurposive sample with professionals (
resultsIPOS-Dem was regarded as comprehensive and accessible. Cultural adaption pertained to issues of comprehension and judgment. Comprehension challenges referred to the person-centered concept of "being affected by" used in the POS-measures. Judgment problems related to persons with limited communication causing challenges in assessment.
conclusionMost issues of cultural adaptation could be addressed by questionnaire modifications. However, interviews unveiled fundamental challenges for using proxy reported person-centered assessments. Continuous training on how to use the instrument is imperative to integrate the person-centered approach of palliative care into nursing homes as a key provider of generalist palliative care for people with dementia. The refined version is ready for psychometric testing.
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