Evidence map›Paper›PMID 33858469›Full record

ArticleReproductive health2021

I felt so much conflict instead of joy: an analysis of open-ended comments from people in British Columbia who declined care recommendations during pregnancy and childbirth.

Kathrin Stoll, Jessie J Wang, Paulomi Niles, Lindsay Wells, Saraswathi Vedam

Open access · goldAbstract read
In one paragraph

Article in Reproductive health, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers.

0numbers the graph read from it
0cells of the map it votes in
14citing papers in PubMed
3.0field-weighted citation impact, top 8% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

14 citing papers in PubMed, 29 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Author response to "Pitfalls of analyzing perinatal outcomes by health care provider".CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2023
    Article
  10. Article
  11. Article
  12. Article
  13. Article
  14. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 1 institution in 2 countries.

Kathrin StollBirth Place Lab, Department of Family Practice, University of British Columbia, 304-5950 University Blvd, Vancouver, BC, V6T 1Z3, Canada. kathrin.stoll@ubc.ca.ORCID http://orcid.org/0000-0002-5944-7945
Jessie J WangFaculty of Medicine, University of British Columbia, 317-2194 Health Sciences Mall, Vancouver, BC, V6T 1Z3, Canada.
Paulomi NilesBirth Place Lab, Department of Family Practice, University of British Columbia, 304-5950 University Blvd, Vancouver, BC, V6T 1Z3, Canada.
Lindsay WellsMidwifery Education Program, Department of Family Practice, University of British Columbia, 304-5950 University Blvd, Vancouver, BC, V6T 1Z3, Canada.
Saraswathi VedamBirth Place Lab, Department of Family Practice, University of British Columbia, 304-5950 University Blvd, Vancouver, BC, V6T 1Z3, Canada.
University of British Columbia · CA

Funding

Michael Smith Foundation for Health Research 17020Vancouver Foundation UNR12-0701
6 · The paper itself

Abstract

backgroundNo Canadian studies to date have examined the experiences of people who decline aspects of care during pregnancy and birth. The current analysis bridges this gap by describing comments from 1123 people in British Columbia (BC) who declined a test or procedure that their care provider recommended.

methodsIn the Changing Childbirth in BC study, childbearing people designed a mixed-methods study, including a cross-sectional survey on experiences of provider-patient interactions over the course of maternity care. We conducted a descriptive quantitative content analysis of 1540 open ended comments about declining care recommendations.

resultsMore than half of all study participants (n = 2100) declined care at some point during pregnancy, birth, or the postpartum period (53.5%), making this a common phenomenon. Participants most commonly declined genetic or gestational diabetes testing, ultrasounds, induction of labour, pharmaceutical pain management during labour, and eye prophylaxis for the newborn. Some people reported that care providers accepted or supported their decision, and others described pressure and coercion from providers. These negative interactions resulted in childbearing people feeling invisible, disempowered and in some cases traumatized. Loss of trust in healthcare providers were also described by childbearing people whose preferences were not respected whereas those who felt informed about their options and supported to make decisions about their care reported positive birth experiences.

conclusionsDeclining care is common during pregnancy and birth and care provider reactions and behaviours greatly influence how childbearing people experience these events. Our findings confirm that clinicians need further training in person-centred decision-making, including respectful communication even when choices fall outside of standard care.

Indexed as

Attitude of Health PersonnelMaternal Health ServicesPhysician-Patient RelationsTreatment RefusalAdultBritish ColumbiaCross-Sectional StudiesDecision Making, SharedFemaleHumansInfant, NewbornParturitionPregnancyCare narrativesChildbirthDeclining careInformed consentLived experiencesPerson-centered careRefusal of careRespectful maternity careShared decision-making

Identifiers

PMID33858469
PMCPMC8048186
OpenAlexW3156087027

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.