Evidence map›Paper›PMID 33852093›Full record

ArticleWiener medizinische Wochenschrift (1946)2022

[Which interventions are recommended in the last phase of Huntington disease?]

Michaela Hierhacker-Nosal

Abstract read
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In one paragraph

Article in Wiener medizinische Wochenschrift (1946), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Michaela Hierhacker-Nosal, Reglergasse 3/208, 1220, Wien, Österreich. m.w.hierhacker@chello.at.ORCID http://orcid.org/0000-0002-3346-1669

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Huntington Disease is a chronically progressive and neurodegenerative disease, which leads to death after 10 to 30 years of suffering and worsening. When suffering Huntington Disease the patient will experience physical, cognitive and psychological issues, so that the patient won't be able to communicate or express his will in the end-of-life-phase of his disease. The problem is, after suffering a while the patient often won't be able to eat by himself, so a feeding tube must be implanted. In some cases a tracheostomy tube is needed because of the respiratory insufficiency. The cause of death in most cases is an infection like a respiratory disease. That's why it's most important when diagnosed with Huntington Disease to advance care planning to end-of-life care like life-sustaining measures that engages patients in decision-making regarding future care, while they are still able to make and express decisions by themselves.

Indexed as

Huntington DiseaseNeurodegenerative DiseasesTerminal CareHumansEnd of lifeFeeding tubeHuntington diseasePalliativ careWill of patient

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.