ArticleBMJ health & care informatics2021
Infrastructure and operating processes of PIONEER, the HDR-UK Data Hub in Acute Care and the workings of the Data Trust Committee: a protocol paper.
Article in BMJ health & care informatics, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
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- Development and implementation of digital solutions in healthcare: insights from the Australian tertiary hospital landscape.Frontiers in digital health · 2025Article
- Public Involvement and Engagement in Big Data Research: Scoping Review.Journal of participatory medicine · 2024Article
- Observational
- Mapping inpatient care pathways for patients with COPD: an observational study using routinely collected electronic hospital record data.ERJ open research · 2023Article
- Road map for clinicians to develop and evaluate AI predictive models to inform clinical decision-making.BMJ health & care informatics · 2023Review
- Researching multimorbidity in hospital: can we deliver on the promise of health informatics?European geriatric medicine · 2023Article
- Observational
- Impact of ethnicity on the accuracy of measurements of oxygen saturations: A retrospective observational cohort study.EClinicalMedicine · 2022Article
- Radiotherapy biobanking: current landscape, opportunities, challenges, and future aspirations.The journal of pathology. Clinical research · 2022Review
- Building ADMISSION - A research collaborative to transform understanding of multiple long-term conditions for people admitted to hospital.Journal of multimorbidity and comorbidityArticle
- Identifying patient-level data risks in trusted research environments: Worked examples with synthetic data.Digital healthArticle
Corrections and comments
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Authors and funding
23 authors.
Funding
Abstract
introductionHealth Data Research UK designated seven UK-based Hubs to facilitate health data use for research. PIONEER is the Hub in Acute Care. PIONEER delivered workshops where patients/public citizens agreed key principles to guide access to unconsented, anonymised, routinely collected health data. These were used to inform the protocol.
methodsThis paper describes the PIONEER infrastructure and data access processes. PIONEER is a research database and analytical environment that links routinely collected health data across community, ambulance and hospital healthcare providers. PIONEER aims ultimately to improve patient health and care, by making health data discoverable and accessible for research by National Health Service, academic and commercial organisations. The PIONEER protocol incorporates principles identified in the public/patient workshops. This includes all data access requests being reviewed by the Data Trust Committee, a group of public citizens who advise on whether requests should be supported prior to licensed access. ETHICS AND DISSEMINATION: East Midlands-Derby REC (20/EM/0158): Confidentiality Advisory Group (20/CAG/0084). www.PIONEERdatahub.co.uk.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.